Video: Executive Director Bob McGuire sums up UCPN's mission - helping people with disabilities grow.

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From the Executive Director - Winter 2012

Careers: Medical Biller

2012 Mohegan Sun Trip

Careers-Staff Psychologist-TBI

Careers: Community Assistant-Life Options

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Irish Splendor with ucpn!

Zumba for ucpn!

0areers: LPN or RN

2012 Forget Me Not Ball

2012 Taste & Toast the Town

2012 ucpn Golf & Tennis Tournament

2012 Dignitary Awards Luncheon

Take the Plunge with the UCPN Polar Bears!

2012 Trivia Challenge

Careers: Per Diem Drivers-Transportation

Careers: Community Aide-Life Options

The ReWalk™ at ucpn’s Fortunoff Treatment and Rehabilitation Center.

From the Executive Director - Fall 2011

Careers: Educational Assistant-Children’s Learning Center

Medicaid Service Coordination

The ReWalk at ucpn’s Fortunoff Treatment and Rehabilitation Center

Judge Anthony Parga: Friend of ucpn

The 2011 Thunderbolts

“Gifts Anyone Can Afford!”

ucpn Speech and Language Therapist Gets Makeover!

Careers:  Nurse Supervisor (RN)

2011 Long Island Festival of Trees

ucpn Planned Giving Updates and Q & A

From Little Girl to Remarkable Young Lady!

Careers: Physical Therapist-Adult Services

The 29th Annual ucpn Golf & Tennis Tournament

Volunteer Opportunities

From the Executive Director - Spring 2011

Free Estate Planning & Will Kits

2011 Polar Bear Plunge: The rain did not dampen the spirit of our Polar Bears!

2011 Sugar Plum Ball

2011 Forget Me Not Ball

2011 Taste & Toast the Town

2011 ucpn Golf & Tennis Tournament

2011 Dignitary Awards Luncheon

2011 Polar Bear Plunge

2011 Trivia Challenge

2010 Festival of Trees

Fall is upon us….

The summer is quickly fading, Fall is upon us; and it is back to school for our children. Old friends and some new faces appear, some new and some old challenges are waiting to be overcome. In this, our 62nd year, our greatest resource – our constituents; provide us with the confidence and support to enable ucpn to thrive and prosper. This newsletter will inform you of events and activities that have occurred over the past several months. Many of these articles identify those constituents that are a part of our ucpn family. This organization was established by families and their supporters in search of a better future for family members with a disability. Over the past 60 years, the Council of Auxiliaries has raised many millions of dollars to ensure the realization of these families’ dreams. Our constituents – the families, the children and adults with disabilities, our volunteers, staff, local, state and federal representatives as well as the corporate world, have all contributed to the well established and responsive organization that we are today. I’ve often written about those who would attempt to destroy what has been built over the decades that witnessed a transition from institutional neglect to a continuum of residential and day program options that today, proudly include independence, individuality and choice as core concepts. Today, what we often hear about is a reduction in the financial support that has allowed for the capable array of services, couched in language that would have you believe “less is better.” Tell that to the family that awaiting residential placement or a day program of their choice. Tell that to the individual who needs a service while being deluged with threats of capitation or outright elimination of access to medical and clinical interventions. Last year, many of our adult participants traveled to Albany on several occasions to meet with representatives to educate and inform them of issues important to those receiving services. Many of you received from me, requests that you too, express your concerns to our representatives on the local, state and national level, and through your feedback to me, I know many of you have. For those who have not been a recent visitor to our facility, I invite you for a tour. Besides witnessing the joy of our children, the accomplishments of the adults, and our dedicated, talented staff, you will also see signage that features “The Star Thrower” by Loren Eiseley. The story speaks of an old man who was picking up objects off the beach and tossing them out into the sea. A young man approached him and saw that the objects were starfish and questions, “Why in the world are you throwing starfish into the water?” “If the starfish are still on the beach when the tide goes out and the sun rises high in the sky, they will die,” replied the old man. “That is ridiculous,” the young man answered. “There are thousands of miles of beach and millions of starfish. You can’t really believe that what you’re doing could possibly make a difference!” The wise old man picked up another starfish, paused thoughtfully, and remarked as he tossed it out into the waves: “It makes a difference to this one.” If each of us picks up a pen, or a phone, or sends one email, just one action from each of the 50,000 readers of this periodical, would make a significant difference. Eleanor Roosevelt said, “The future belongs to those who believe in the beauty of their dreams.” Over 60 years ago, our families dreamt of a better world – that dream has not changed and a better world for individuals with disabilities is attainable with all of your help.

Mary Corbett Wins Achievement Music Award!

Nassau Country Executive, Ed Mangano visits ucpn!

2010 Sugar Plum Ball

I wish all readers a happy and healthy 2010…

I wish all readers a happy and healthy 2010 and, that if you have made resolutions or plans to change or improve, you are successful! One of my New Year’s resolutions is to maintain communication with you, our constituents to keep you aware of our successes, opportunities and threats. This periodical is one of the tools tI use to achieve this goal. I am delighted to share the most recent success story that I believe was achieved through the advocacy of our consumers, families and staff. The Governor’s budget, released recently, includes a trend which was missing from last year’s budget. Nonetheless, in the past year, extensive letter writing, phone calls, emails and visits, not only to our legislators, but also to the Governor’s office in Albany has finally resulted in the trend being in the budget for 2010/2011. Unfortunately, there are also cuts and we will attempt to persuade our legislators and the Governor to remove these significant reductions as they have the affect of reducing the value of the trend. Make no mistake, your message was heard. The voices and the votes of all who insist that individuals who are disabled, should not be relegated to second class citizenry, is a powerful method to educate and influence. Keep it up. In this paper, you will see many stories of generosity, achievement and accomplishment. Enrollment for our children in the CLC is at the highest level in the school’s history. That is a huge testimonial to the administration, faculty and support staff. Keep up the great work. Our adult programs’ attendance figures are also way above our historical average. Here too, a caring and professional staff has created such meaningful activities that participants don’t want to miss a day. Credit also should be shared with many of our adult consumers who partner with our staff in developing much of the curricula. Our clinic program has also had more visits this past twelve months than anticipated. Creating an efficient and effective model that provides responsive services to those children and adults who attend our day programs as well as our outpatients, has been a goal of the entire clinical and support team and they are strident in these efforts as they also work towards a more financially stable clinic operation. Our Residential Services program continues to grow as three new homes have been opened up in the past two years. These houses are homes for 18 individuals (six in each home). At a recent gathering at one of our homes, one of our residents told me that, “ he had it made.” When I asked why, he replied, “Because I have great housemates and wonderful staff.” This combination of terrific individuals who reside in our homes and tremendously dedicated and caring staff ensures that those who count on ucpn to provide a nurturing, warm environment will not be disappointed. There are many other staff and volunteers who contribute to the culture of our organization. Now, in our 62nd year, we have been fortunate to have partnered with the Council of Auxiliaries, now celebrating their 60th year of supporting ucpn in all its endeavors. Over these 60 years, these women have raised millions of dollars for our Agency. Who are these special people? Well, some have a child who has a disabling condition – but the majority do not. Many are just neighbors who when asked if they would like to join an auxiliary whose purpose was to raise money, they just said yes. Many of these very special people have volunteered not for 10 months or 10 years, but for many decades. Along the way, they have forged lifetime friendships and had a lot of fun. However, to a person, they would all tell you that their motivation was always to help children and adults have a better life and, I say with conviction, that they have certainly reached their goal. In closing, I am offering each of you a personal tour of our Agency. You deserve to know the value of your gifts to ucpn. I would like to say a personal thank you and as importantly, I would like you to see the faces of those children and adults whose lives are better because you’ve chosen to be a part of us. Please take me up on this invitation and call me at 516-377-2030. Keep up your commitment. We need you.

Legal: change of privacy policies

UNITED CEREBRAL PALSY ASSOCIATION OF NASSAU COUNTY, INC.

380 Washington Avenue, Roosevelt, New York 11575

 

NOTICE OF CHANGE IN PRIVACY POLICIES

 

This memo is intended to inform our consumers and families that we have made changes to our privacy policies in accordance with recent changes in federal law.  The federal Health Information Technology for Economic and Clinical Health Act enacted in 2009, made changes to the HIPAA privacy and security rules that apply to personal health information maintained by us.  As a result, we have revised our privacy policies in accordance with the new federal requirements. 

 

The following is an overview of the HIPAA changes that go into effect on February 17, 2010: 

 

▪ Access to Information in Electronic Format:  If we maintain an electronic health record for an individual, the individual may request access to the information in an electronic format. 

▪ Restrictions on Disclosures:  We must comply with any request for restrictions on disclosures if the information is to be sent to a health plan for payment or health care operations purposes and the disclosure relates to products or services that were paid for solely out-of-pocket. 

▪ Accounting of Disclosures:  If we maintain an electronic health record for an individual, the individual will now be entitled to receive an accounting of routine disclosures of their health information, upon request.   

▪ Marketing and Health Care Operations:  The new rule clarifies the interaction between marketing activities and health care operations activities. 

▪ Opt-Out of Fundraising:  Language providing individuals with the chance to "opt-out" of fundraising communications must be presented in a clear and conspicuous manner.  Any opt-outs elected will be treated as a revocation of any prior authorization.

▪ Business Associates:  HIPAA privacy and security rules will now apply directly to business associates who will be subject to the same civil and criminal penalties that apply to providers. 

▪ Enhanced Enforcement:  HIPAA civil money penalties are now increased and criminal penalties are added for individuals or employees of providers who violate HIPAA. 

▪ Breach Notification:  HIPAA providers and business associates must provide notice to all affected individuals in the event of an unauthorized or inadvertent breach of unsecured personal health information.

 

For more information or to request a copy of our revised Notice of Privacy Practices, please contact the agency's HIPAA Privacy Officer at 516-377-2032. 

 

Dated:  February 1, 2010

 

Shop, Save & Support ucpn!

ucpn’s Life Options Program Honored!

ucpn Community-Based Day Habilitation at Wantagh Celebrates 10 Year Anniversary

SAVE Money and Time with Rehab Solutions Online!

SHOP REHABSOLUTIONSONLINE.COM!

Bob McGuire: I’m concerned. And you should be, too.

There are many great accomplishments to celebrate and applaud with regard to our organization’s history. The progress that’s been made over 60 years and the achievements of so many are testament to human will power and the ultimate sense of fairness. This periodical reflects the most recent successes and activities that highlight and confirm that the organization continues to meet the mission of our Agency: to provide the highest quality services to our children and our adults. All of our accomplishments have required a team effort. Of course we start with the participants in our programs, both the children and adults, our Board of Directors, the Council of Auxiliaries, our parents and volunteers, and our staff, along with the community, corporations and local, state and national leaders who recognize that individuals with disabilities deserve a chance at the “American Dream” and protection of their civil rights. All are responsible for the progress over these past 60 years.

Today, however, we can look at the economy and see fingers pointing and pencils slashing budgets that are not merely budgets, they’re people. All of us should be concerned about the current status of programs that serve individuals with disabilities. In our last Center Square, I suggested that readers send the Center Square to their representatives on every level so that we provide them continued education and evidence of their good decisions of the past. Today, more than ever, your voice needs to be heard. I have stated often times, that a real and present danger exists and it is never so clear as today.

We must prevent a roll back of the progress begun 60 years ago and accelerated in the past 25 years. We must ensure that individuals with disabilities have meaningful day programs. We must make certain that parents and individuals with disabilities have options in the residential environment so that when a family is no longer able to care for their family member, a welcoming home in the community exists. We must make sure that our representatives know our concerns. We must have the Governor hear your voice. Today, more than ever, you must speak up. You must let your representatives be aware that you have an interest in the continued progress and in the continued protection of the civil rights of individuals with disabilities.

To help me communicate with you, I would like to ask each of you who wish to be kept up-to-date with issues that affect our mission to send me your email address. Upon receipt, I will use today’s technology to expedite the communication process enabling you to have up-to-the minute information and opportunities to respond in a timely manner.

Thank you for your support.

Purchase Tickets and support ucpn!

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Employee Benefits

Crazy Cold for the Cause: LI Polar Bears Take the Plunge!

About Us

Council Events

Membership

ucpn Annual Reports

Special Blessings Gifts

Speakers Bureau Brings “Kids on the Block” Puppet Presentation to Local First Grade

Forensics, Yoga, Public Speaking: Life Options is Expanding Horizons

UCPN Represented at Prestigious Conference

Michael Badalucco of “The Practice” visits UCPN

Bob’s Letter for Dec: Together we can ensure a better life.

I’m writing this message a few days after Congress and the President have signed off on the bailout and Governor Patterson has ordered New York State’s legislature to go back again and reduce expenses throughout the State. Clearly, we are living in troubled times and these difficulties will have rippling affects throughout our entire country. As anyone who has followed our agency’s history will know, it is evident that we would be concerned about how these decisions will impact on our ability to meet the needs of individuals with disabilities. Long after the dark days of Willowbrook and before the period when families were left, most often, to their own individual capabilities, we have come to expect a kind and generous country that recognizes its responsibilities to all citizens. That world is threatened now. Opportunities to be educated, work, recreate, live independently, have appropriate medical services, and reach one’s true potential, may be seriously limited or eliminated if we are not vigilant. This is the time to communicate with our representatives at every level of government reminding them of the results and benefits of their past decisions in which programs and services for individuals with disabilities were developed and grew to a mature service system. When you read the contents of Center Square, the myriad experiences and successes enjoyed by our participants and the growth of opportunities is quite evident. Please consider sending the Center Square to your representative(s) at the local, state and federal level to ensure that they understand the value of their support. You can get more copies by contacting the ucpn Development office, if needed. Thank you all for the contributions you have made to our organization. Over the 60 years of our existence, tens of thousands of children and adults with disabilities and their families have a better life because of you. Let’s make sure it continues.

Careers: Assistant Community Coach-Day Hab

2011 Fashion Fantasy

Our Mission

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The Ballerinas of UCPN: Reaching For Their Dreams.

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Legal-Privacy

UNITED CEREBRAL PALSY ASSOCIATION OF NASSAU COUNTY, INC.

380 Washington Avenue, Roosevelt, New York  11575

 

 

Notice of Health Information Privacy Practices

 

 

THIS NOTICE DESCRIBES HOW IDENTIFIABLE HEALTH INFORMATION ABOUT YOU MAY BE USED AND DISCLOSED AND HOW YOU CAN GET ACCESS TO THIS INFORMATION.  PLEASE REVIEW IT CAREFULLY.

 

This notice is effective as of February 17, 2010.  If you have any questions about this notice, please contact the ucpn Privacy Officer, at 516-377-2032

 

Our Privacy Commitment to You

 

At ucpn, we understand that information about you and your family is personal.  We are committed to protecting your privacy and sharing information only with those who need to know and are allowed to see the information to assure quality services to you.

 

1.            Who will follow these practices:

 

All people who work for ucpn in our programs, clinics and in our ucpn administrative offices will follow this notice.  This includes employees, persons ucpn contracts with (contractors) who are authorized to enter information in your clinical record or need to review your record to provide services to you, and volunteers that ucpn allows to assist you.

 

2.            What information is protected:

 

All information we create or keep that relates to your health or care and treatment, including your name, address, birth date, social security number, your medical information, your individualized service plan and other information about your care in our programs.

 

Your Health/Clinical Information Rights

 

You have the following rights concerning your health/clinical information.  When we use the word “you” in this notice, we also mean your personal representative.  Depending on your circumstances and in accordance with state law, this may be your guardian, involved parent, spouse, or adult child, or your advocate.

 

• You have the right to review your health/clinical information and obtain a copy.  Not including psychotherapy notes, records regarding incident reports and investigations and information compiled for use in court or administration proceedings.  Your request to review your information should be put in writing.

 

• If we deny your request to see your health/clinical information, you have the right to request a review of that denial.  A professional chosen by ucpn who was not involved in denying your request will review the record and decide if you may have access to the record.  Denials will be explained in writing.

 

• You have the right to ask ucpn to change or amend your health/clinical information that you believe is incorrect or incomplete.  We may deny your request in some cases, for example, if the record was not created by ucpn or if after reviewing your request, we believe that the record is accurate and complete.  If we approve the request for amendment, we will change the health information and inform you of that action and tell others that need to know about the change in the PHI.

 

• You have the right to request a list of the disclosures ucpn has made of your health/clinical information.  We will not, however, keep or provide you with a list of certain disclosures, for example, disclosures made for treatment, payment and health care operations, or disclosures made to you or made to others with your permission.  This list of disclosures will also not include disclosures made for national security or intelligence purposes, to law enforcement officials or correctional institutions, or disclosures made before April, 2003. 

 

• You have the right to ask that we limit how we disclose or use your protected health information (PHI).  We will consider your request, but are not legally bound to agree to the restriction.  To the extent that we do agree to any restrictions on our use/disclosure of your PHI, we will put the agreement in writing and abide by it except in emergency situations.  We cannot agree to limit uses/disclosures that are required by law.

 

• Based on the requirements of the Health Information Technology for Economic and Clinical Health (HITECH) Act ucpn will comply with your to request to restrict information if the information is to be sent to a health plan for payment or health care operations purposes and the disclosure relates to products or services that were paid for solely out-of-pocket (unless the disclosure is otherwise required by law).

 

• Under the HITECH Act you have the right, if ucpn maintains an electronic health record of your information, to request access to the information in an electronic format or have the information transmitted electronically to a designated recipient.

 

·         Under the HITECH Act you may receive an accounting of routine disclosures of PHI if the PHI is maintained in an electronic health records system, for the three year period prior to the date of the request.

 

• You have the right to request that ucpn communicates with you in a way that will help keep your information confidential.

 

• You have the right to receive a paper copy of this notice.  You may ask ucpn staff to give you another copy or you may obtain one from our website at http://ucpn.org.

 

• To request access to your health/clinical information or to request any of the rights listed here, you may contact the Medical Records Supervisor at 516-378-2000, ext. 266.

 

ucpn’s Responsibilities for your Health Information

 

ucpn is required by law to:

 

·         Maintain the privacy of your information;

·         Give you this notice of our legal duties and practices concerning the health information we have about you.

·         Follow the rules in this notice.  ucpn will use or share information about you only with your permission except for the reasons explained in this notice.  We will inform you if we make changes to our privacy practices in the future.  If significant changes are made, ucpn will give you a new notice and post a new notice on our website at http://ucpn.org.

 

How ucpn Uses and Discloses Health Care Information

 

ucpn may use and disclose health/clinical information without your permission for the purposes described below.  For each of the categories of uses and disclosures, we explain what we mean and offer an example.  Not every use or disclosure is described, but all the ways we will use or disclose information will fall within these categories.

 

• Treatment: ucpn will use your health/clinical information to provide you with treatment and services.  We may disclose health/clinical information to doctors, nurses, psychologists, social workers, qualified mental retardation professions (QMRP’s), residential staff and other ucpn personnel, volunteers or interns who are involved in providing you care.  For example, involved staff may discuss your health/clinical information to develop and carry out your individualized service plan (ISP).  Other ucpn staff may share your medical tests, respite care, transportation, etc.  We may also need to disclose your health/clinical information to your service coordinator and other providers outside of ucpn who are responsible for providing you with the services identified in your ISP or to obtain new services for you.

 

• Appointment Reminders:  We may use and disclose medical information to contact you as a reminder that you have an appointment for treatment or services at one of our programs.

 

• Payment: ucpn will use your health/clinical information so that we can bill and collect payment from you, a third party, an insurance company, Medicare or Medicaid or other government agencies.  For example, we may need to provide the NYS Department of Health (Medicaid) with information about the services you received in our facility or through one of our HCBS waiver programs so they will pay us for the services.  In addition, we may disclose your health/clinical information to receive prior approval for payment of services you may need.  Also, we may disclose your health/clinical information to the US Social Security Administration, or the Department of Health to determine your eligibility for coverage or your ability to pay for services.

 

• Health Care Operations:  ucpn will use health/clinical information for administrative operations.  These uses and disclosures are necessary to operate ucpn programs and residences and to make sure all consumers receive appropriate, quality care.  For example, we may use health/clinical information for quality improvement to review our treatment and services and to evaluate the performance of our staff in caring for you.  We may also disclose information to clinicians and other personnel for on the job training.  We will share your health/clinical information with other ucpn staff for the purposes of obtaining legal services through ucpn Counsel’s office, conducting fiscal audits and for fraud and abuse detection and compliance through out Division of Quality Development and Support.  We will also share your health/clinical information with ucpn staff to resolve complaints or objections to your services.  We may also disclose health/clinical information to our business associates who need access to the information to perform administrative or professional services on our behalf.

 

 

 

• Public Relations/Fund Raising/Grants:  ucpn may use health/clinical information in summary format to describe the scope of agency services for public relations, fund raising and/or grant applications.  For example, a grant application may ask for the organization to describe the nature of individuals served by a specific ucpn program.  Such information would describe the general population served and not disclose individual information of a person.  Any need to disclose individualized information for public relation funding or grant purposes would not be disclosed unless specific authorization from the person is obtained. Under the HITECH Act,  you have the right to opt-out of future fundraising communications. Any opt-out elected will be treated as revocation of any prior authorizations.

 

Other Uses and Disclosures that Do Not Require Permission

 

In addition to treatment, payment and health care operations, ucpn will use your health/clinical information without your permission for the following reasons:

 

WHEN WE ARE REQUIRED TO DO SO BY FEDERAL OR STATE LAW:

 

• For public health reasons, including prevention and control of disease, injury or disability, child abuse or neglect, reactions to medication or problems with products, and to notify people who may have been exposed to a disease or are at risk of spreading the disease;
• To report domestic violence and adult abuse or neglect to government authorities if you agree of if necessary, to prevent serious harm;
• For health oversight activities, including audits, investigations, surveys and inspections and licensure.  These activities are necessary for government to monitor the health care system, government programs, and compliance with civil rights laws.
• For judicial and administrative proceedings, including hearings and disputes.  If you are involved in a court or administrative proceeding we will disclose health/clinical information if the judge or presiding officer orders us to share the information.
• For law enforcement purposes, in response to a subpoena or other legal process, to identify a suspect or witness or missing person, regarding a victim of a crime, a death, criminal conduct at the facility and in emergency circumstances to report a crime;
• Upon your death, to coroners or medical examiners for identification purposes or to determine cause of death and to funeral directors to allow them to carry out their duties;
• To organ procurement organizations to accomplish cadaver, eye, tissue or organ donations in compliance with state law;
• For workers compensation, to the extent authorized by and to the extent necessary to comply with laws relating to workers’ compensation or other similar programs established by law.
• For research purposes when you have agreed to participate in the research an Institutional Review Board or Privacy Committee has approved the use of the health/clinical information for the research purposes;
• To prevent or lessen a serious and imminent threat to your health and safety or the health and safety of others.
• To authorized federal officials for intelligence and other national security activities authorized by law or to provide protective services to the President and other officials.
• To correctional institutions or law enforcement officials if you are an inmate and the information is necessary to provide you with health care, protect your health and safety or that of others, or for the safety of the correctional institution.
• To governmental agencies that administer public benefits if necessary to coordinate the covered functions of the programs.

 

Uses and Disclosures that Require Your Agreement or Authorization

 

ucpn may disclose health/clinical information to the following persons if we tell you we are going to use or disclose it and you agree or do not object:

 

• To family members and personal representatives who are involved in your care if the information is relevant to their involvement and to notify them of your condition and location; or
• To disaster relief organizations that need to notify your family about your condition and location should a disaster occur.

 

Authorization Required for All Other Uses and Disclosures

 

• For all other types of uses and disclosures not described in this Notice, ucpn will use or disclose health/clinical information only with a written authorization signed by you or an authorized personal representative that states who may receive the information, what information is to be shared, the purpose of the use or disclosure and an expiration for the authorization.  Written authorizations are always required for use and disclosure of psychotherapy notes and for marketing purposes.

Note: If you cannot give permission due to an emergency, ucpn may release health/clinical information in your best interest.  We must tell you as soon as possible after releasing the information.  This notification will be made in writing.  You may revoke your authorization at any time.  If you revoke your authorization in writing, we will no longer use or disclose your health/clinical information for the reasons stated in you authorization.  We cannot, however, take back disclosures we made before you revoked and we must retain health/clinical information that indicates the services we have provided to you.

 

Notice of Breach of Health Information

 

Breach means the acquisition, access, use or disclosure of protected health information in violation of the HIPAA privacy rule that compromises the security or privacy of the information.  The phrase "compromises the security or privacy of health information" means poses a significant risk of financial, reputational or other harm to the individual.

 

If a breach occurs and we determine that the breach poses significant harm to the individual, we will provide written notice to the individual affected as described below.  In order to determine whether the breach poses significant harm to the individual, we will perform a fact-based risk assessment that includes consideration of the following factors:  (i) who or what type of entity received access to the information; (ii) steps taken to mitigate harm, such as obtaining satisfactory assurances (e.g., a confidentiality agreement) from the recipient that the information will not be further used or disclosed, or will be destroyed; (iii) if the information was returned prior to it being accessed for an improper purpose; and (iv) the nature, type and amount of information used or disclosed. 

 

A.   Notice to the Individual

 

            The required notice will be sent without unreasonable delay and in no      case later than 60 calendar days after discovery of a breach.  A breach   will be treated as discovered by us as of the first day on which the breach    is known to us.  The notice will be written in plain language and will             contain the following information:  (i) a brief description of what happened,          the date of the breach, if known, and the date of discovery; (ii) the type of     PHI involved in the breach; (iii) any precautionary steps the individual           should take; (iv) a description of what we are doing to investigate and         mitigate the breach and prevent future breaches; and (v) contact     information for us, including a toll-free telephone number, e-mail address,   website or postal address. 

 

            The notice will be sent by first-class mail or by email, if the individual has specified a preference for communication by email.  If contact information     for the individual in question is insufficient or out-of-date, we may contact      the individual by telephone or other permissible alternate method of             communication. 

 

            Finally, if the notification is of an urgent nature because of possible           imminent misuse of unsecured health information, we may contact the      individual by telephone or other means, as appropriate, in addition to the        written or other forms of notice. 

 

            B.  Notice to the Media

 

            In the event of a breach affecting more than 500 residents of a State or      jurisdiction, we will, without unreasonable delay and in no case later than            60 calendar days after discovery of the breach, notify prominent media    outlets serving the State or jurisdiction. 

 

            C.  Notice to HHS

 

            For breaches affecting fewer than 500 individuals, we are required to         maintain an annual log of such breaches and provide a copy of such log to     HHS within 60 days of the end of the calendar year.  For breaches affecting 500 or more individuals, we are required to notify HHS at the       same time notice is provided to the individual.  

 

            D.  Law Enforcement Delay

 

            Following a breach, we may delay transmission of any of the required       forms of notice if we are informed by a law enforcement official that such         notice would impede a criminal investigation or cause damage to national             security. 

 

Changes to this Notice

 

We reserve the right to change this notice.  We reserve the right to make changes to terms described in this notice and to make the new notice terms effective to all health/clinical information that ucpn maintains.  We will post the new notice with the effective date in our facilities.  In addition, we will offer you a copy of the revised notice at your next scheduled service-planning meeting.

 

Complaints

 

If you believe your privacy rights have been violated:

 

• You may file a complaint with the ucpn Corporate Compliance Officer at 380 Washington Avenue, Roosevelt, NY  11575, 516-378-2000.  Or, you may contact the Secretary of the Department of Health and Human Services at 200 Independence Avenue, S.W., Washington, DC  20201, 877-696-6776.
• You may file a grievance with the Office of Civil Rights by calling 866-OCR-PRIV or (866) 627-7748, or (886) 788-4989 (TTY).

 

All complaints must be submitted in writing.  You will not be penalized for filing a complaint.

VERIFICATION OF RECEIPT OF HEALTH INFORMATION PRIVACY PRACTICES

 

 

 

By signature below, I verify that I have received a copy of the Health Information Privacy Practices of the United Cerebral Palsy Association of Nassau County, Inc. (ucpn).

 

 

 

________________________________________________
Signature of Person or

Online Privacy

The ucpn respects the privacy of each individual who contacts us.  We are grateful for your support and the crucial role you play in helping us continue our valuable work.  As part of our commitment to safe guarding your privacy we have adopted the online privacy policy outlined below. 

Collection and use of information

We collect two kinds of information, site usage data, which is not individually identifiable, and individually identifiable information.

Site usage data 

Our Web server automatically recognizes and collects the domain name of each visitor to our Web site.  We collect information about visitors to our site, such as the number visitors, what pages they access, and the length of their visit.  This information is used in aggregate form in order to manage our Web site and improve its content. 

Individually identifiable information

We collect individually identifiable information about you when you choose to share information about yourself, for example, when you make a donation, request information or sign up to be an advocate.  This information may include your postal or e-mail address, your telephone number and the type of disability you may have.

Individually identifiable information is used to provide you with information or to deliver the service you have requested.  If you provide your postal address, telephone number or e-mail address to ucpn online, you may receive periodic contact from us. 

If you would like to change the way we contact you, please fill out the Privacy Preference Form.   

At certain parts of some of our site, only persons who provide us with the requested personally identifiable information will be able to use tools or otherwise participate in the site’s activities and offerings. 

We also may collect certain non-personally identifiable information when you visit some Web pages or fill out forms such as the type of browser you are using (e.g., Netscapes Internet Explorer), the type of operating system you are using, (e.g., Windows ’95 or Mac OS) and the domain name of your Internet service provider (e.g., America Online and Earthlink).  

Some portions of our site provide special services and offer interactive tools that allow users to upload information for public consumption.  In some cases, users can share experiences, give advice and connect with others.  This privacy policy does not apply RA Connect.  Pleas remember that chat rooms, message boards and personal page are public forums and personal information disclosed there will be seen by others.  In addition, please exercise caution when posting information or providing information about yourself to others, especially contact information, such as street address, telephone number or email address.  For more on the use of the RA Connect, please refer to the Frequently Asked Questions page for that section of the site. 

Cookies 

We use a technology called a “cookie “ to recognize you when you return to our site.   Cookies help make your visit more convenient and enjoyable however, if you wish, you may direct your browser to reject cookies.  For more information, see our Site Help Tips.

Sharing Information with Others

From time to time, ucpn may make our constituent mailing addresses available to other worthy nonprofit and commercial organizations whose services may be of interest to our supporters.  We carefully screen these organizations.  If you do not want us to share your postal address with other companies or organizations, please fill out the Privacy Preference Form. 

At times we may offer content (e.g., contests, sweepstakes, or promotions) that is sponsored by or co-branded with identified third parties.  By virtue of these relationships, the third parties may obtain personally identifiable information that visitors voluntarily submit to participate in the site activity.   ucpn has no control over the third – party’s use of this information. 

We will also share personal information when we believe release is appropriate to comply with the law, enforce our rights, or protect the safety of our users of others. 

Email Communications 

We occasionally send out an email newsletter and direct email communications to Cerebral Palsy site visitors to highlight news, information and opportunities available from ucpn. You can elect not to receive communications from us, either by completing our privacy preference form or by noting your preference in response to communications from us.  In addition, all ucpn e-newsletters and direct email communications have easy-to-follow unsubscribe instructions at the bottom of each email.

Links to Other Sites 

Our site provides links to our Web sites where you can find out more about Services in the community.  Please note that ucpn is not responsible for the information practices of linked sites.  We encourage you to review the privacy policy of each site you visit.

Children Online 

Protecting the privacy of the very young is especially important.  For that reason, we adhere to the 1998 Children’s Online Privacy Protection Act (COPPA).  (For more information, visit the Federal Trade Commission’s COPPA site at http://www.ftc.gov/bcp/conline/edcams/kidzprivacy/adults.htm.)

Security

In order to prevent unauthorized access and protect our user’s personal information, we strive to maintain physical, electronic and administrative safeguards to secure the information we collect online.  For example, online shopping and contributions are processed using a secure server. This secure server software, SSL (Secure Sockets Layer), encrypts all information you input before it is sent to us.  Furthermore, all the customer transactional data we collect is protected against unauthorized access with the use of digital certificates. 

Privacy Policy Changes 

If we decide to change our privacy policy, we will post those changes here.  We encourage you to review our policy from time to time.

Questions or Concerns 

Whenever you have any questions or concerns, please contact us through any media you prefer.  Your complete satisfaction in dealing with ucpn is important to us.  If you have questions about the United Cerebral Palsy Association of Nassau County, Inc., (ucpn) privacy practice described above, please send an e-mail message to .  Thank you.

If you have general questions about ucpn, please send messages to

  

Our History

Creation Raises Disability Awareness

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"A community can be judged by how they treat the neediest in their group. We should be proud of how we've addressed the needs of people with disabilities in our community."

- Bob McGuire, Executive Director

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"A community can be judged by how they treat the neediest in their group. We should be proud of how we've addressed the needs of people with disabilities in our community."

- Bob McGuire, Executive Director

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Video: Executive Director Bob McGuire sums up UCPN's mission - helping people with disabilities grow.

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United Cerebral Palsy Association of Nassau County

Address:

380 Washington Avenue
Roosevelt, New York 11575-1899

Phone:

(516) 378-2000

Email:

You can Email Us your question and we will get back to you as soon as possible.

Comments: We want to hear from you!

Your thoughts and feedback are also valuable ways to support the efforts of UCPN. We look forward to hearing from you!

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"A community can be judged by how they treat the neediest in their group. We should be proud of how we've addressed the needs of people with disabilities in our community."

- Bob McGuire, Executive Director

Adult Day Habilitation

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