Video: Executive Director Bob McGuire sums up UCPN's mission - helping people with disabilities grow.
UNITED CEREBRAL PALSY ASSOCIATION OF NASSAU COUNTY, INC.
380 Washington Avenue, Roosevelt, New York 11575
NOTICE OF CHANGE IN PRIVACY POLICIES
This memo is intended to inform our consumers and families that we have made changes to our privacy policies in accordance with recent changes in federal law. The federal Health Information Technology for Economic and Clinical Health Act enacted in 2009, made changes to the HIPAA privacy and security rules that apply to personal health information maintained by us. As a result, we have revised our privacy policies in accordance with the new federal requirements.
The following is an overview of the HIPAA changes that go into effect on February 17, 2010:
▪ Access to Information in Electronic Format: If we maintain an electronic health record for an individual, the individual may request access to the information in an electronic format.
▪ Restrictions on Disclosures: We must comply with any request for restrictions on disclosures if the information is to be sent to a health plan for payment or health care operations purposes and the disclosure relates to products or services that were paid for solely out-of-pocket.
▪ Accounting of Disclosures: If we maintain an electronic health record for an individual, the individual will now be entitled to receive an accounting of routine disclosures of their health information, upon request.
▪ Marketing and Health Care Operations: The new rule clarifies the interaction between marketing activities and health care operations activities.
▪ Opt-Out of Fundraising: Language providing individuals with the chance to "opt-out" of fundraising communications must be presented in a clear and conspicuous manner. Any opt-outs elected will be treated as a revocation of any prior authorization.
▪ Business Associates: HIPAA privacy and security rules will now apply directly to business associates who will be subject to the same civil and criminal penalties that apply to providers.
▪ Enhanced Enforcement: HIPAA civil money penalties are now increased and criminal penalties are added for individuals or employees of providers who violate HIPAA.
▪ Breach Notification: HIPAA providers and business associates must provide notice to all affected individuals in the event of an unauthorized or inadvertent breach of unsecured personal health information.
For more information or to request a copy of our revised Notice of Privacy Practices, please contact the agency's HIPAA Privacy Officer at 516-377-2032.
Dated: February 1, 2010
There are many great accomplishments to celebrate and applaud with regard to our organization’s history. The progress that’s been made over 60 years and the achievements of so many are testament to human will power and the ultimate sense of fairness. This periodical reflects the most recent successes and activities that highlight and confirm that the organization continues to meet the mission of our Agency: to provide the highest quality services to our children and our adults. All of our accomplishments have required a team effort. Of course we start with the participants in our programs, both the children and adults, our Board of Directors, the Council of Auxiliaries, our parents and volunteers, and our staff, along with the community, corporations and local, state and national leaders who recognize that individuals with disabilities deserve a chance at the “American Dream” and protection of their civil rights. All are responsible for the progress over these past 60 years.
Today, however, we can look at the economy and see fingers pointing and pencils slashing budgets that are not merely budgets, they’re people. All of us should be concerned about the current status of programs that serve individuals with disabilities. In our last Center Square, I suggested that readers send the Center Square to their representatives on every level so that we provide them continued education and evidence of their good decisions of the past. Today, more than ever, your voice needs to be heard. I have stated often times, that a real and present danger exists and it is never so clear as today.
We must prevent a roll back of the progress begun 60 years ago and accelerated in the past 25 years. We must ensure that individuals with disabilities have meaningful day programs. We must make certain that parents and individuals with disabilities have options in the residential environment so that when a family is no longer able to care for their family member, a welcoming home in the community exists. We must make sure that our representatives know our concerns. We must have the Governor hear your voice. Today, more than ever, you must speak up. You must let your representatives be aware that you have an interest in the continued progress and in the continued protection of the civil rights of individuals with disabilities.
To help me communicate with you, I would like to ask each of you who wish to be kept up-to-date with issues that affect our mission to send me your email address. Upon receipt, I will use today’s technology to expedite the communication process enabling you to have up-to-the minute information and opportunities to respond in a timely manner.
Thank you for your support.
UNITED CEREBRAL PALSY ASSOCIATION OF NASSAU COUNTY, INC.
380 Washington Avenue, Roosevelt, New York 11575
THIS NOTICE DESCRIBES HOW IDENTIFIABLE HEALTH INFORMATION ABOUT YOU MAY BE USED AND DISCLOSED AND HOW YOU CAN GET ACCESS TO THIS INFORMATION. PLEASE REVIEW IT CAREFULLY.
This notice is effective as of February 17, 2010. If you have any questions about this notice, please contact the ucpn Privacy Officer, at 516-377-2032
At ucpn, we understand that information about you and your family is personal. We are committed to protecting your privacy and sharing information only with those who need to know and are allowed to see the information to assure quality services to you.
1. Who will follow these practices:
All people who work for ucpn in our programs, clinics and in our ucpn administrative offices will follow this notice. This includes employees, persons ucpn contracts with (contractors) who are authorized to enter information in your clinical record or need to review your record to provide services to you, and volunteers that ucpn allows to assist you.
2. What information is protected:
All information we create or keep that relates to your health or care and treatment, including your name, address, birth date, social security number, your medical information, your individualized service plan and other information about your care in our programs.
You have the following rights concerning your health/clinical information. When we use the word “you” in this notice, we also mean your personal representative. Depending on your circumstances and in accordance with state law, this may be your guardian, involved parent, spouse, or adult child, or your advocate.
· Under the HITECH Act you may receive an accounting of routine disclosures of PHI if the PHI is maintained in an electronic health records system, for the three year period prior to the date of the request.
ucpn’s Responsibilities for your Health Information
ucpn is required by law to:
· Maintain the privacy of your information;
· Give you this notice of our legal duties and practices concerning the health information we have about you.
· Follow the rules in this notice. ucpn will use or share information about you only with your permission except for the reasons explained in this notice. We will inform you if we make changes to our privacy practices in the future. If significant changes are made, ucpn will give you a new notice and post a new notice on our website at http://ucpn.org.
How ucpn Uses and Discloses Health Care Information
ucpn may use and disclose health/clinical information without your permission for the purposes described below. For each of the categories of uses and disclosures, we explain what we mean and offer an example. Not every use or disclosure is described, but all the ways we will use or disclose information will fall within these categories.
In addition to treatment, payment and health care operations, ucpn will use your health/clinical information without your permission for the following reasons:
WHEN WE ARE REQUIRED TO DO SO BY FEDERAL OR STATE LAW:
ucpn may disclose health/clinical information to the following persons if we tell you we are going to use or disclose it and you agree or do not object:
Note: If you cannot give permission due to an emergency, ucpn may release health/clinical information in your best interest. We must tell you as soon as possible after releasing the information. This notification will be made in writing. You may revoke your authorization at any time. If you revoke your authorization in writing, we will no longer use or disclose your health/clinical information for the reasons stated in you authorization. We cannot, however, take back disclosures we made before you revoked and we must retain health/clinical information that indicates the services we have provided to you.
Notice of Breach of Health Information
Breach means the acquisition, access, use or disclosure of protected health information in violation of the HIPAA privacy rule that compromises the security or privacy of the information. The phrase "compromises the security or privacy of health information" means poses a significant risk of financial, reputational or other harm to the individual.
If a breach occurs and we determine that the breach poses significant harm to the individual, we will provide written notice to the individual affected as described below. In order to determine whether the breach poses significant harm to the individual, we will perform a fact-based risk assessment that includes consideration of the following factors: (i) who or what type of entity received access to the information; (ii) steps taken to mitigate harm, such as obtaining satisfactory assurances (e.g., a confidentiality agreement) from the recipient that the information will not be further used or disclosed, or will be destroyed; (iii) if the information was returned prior to it being accessed for an improper purpose; and (iv) the nature, type and amount of information used or disclosed.
A. Notice to the Individual
The required notice will be sent without unreasonable delay and in no case later than 60 calendar days after discovery of a breach. A breach will be treated as discovered by us as of the first day on which the breach is known to us. The notice will be written in plain language and will contain the following information: (i) a brief description of what happened, the date of the breach, if known, and the date of discovery; (ii) the type of PHI involved in the breach; (iii) any precautionary steps the individual should take; (iv) a description of what we are doing to investigate and mitigate the breach and prevent future breaches; and (v) contact information for us, including a toll-free telephone number, e-mail address, website or postal address.
The notice will be sent by first-class mail or by email, if the individual has specified a preference for communication by email. If contact information for the individual in question is insufficient or out-of-date, we may contact the individual by telephone or other permissible alternate method of communication.
Finally, if the notification is of an urgent nature because of possible imminent misuse of unsecured health information, we may contact the individual by telephone or other means, as appropriate, in addition to the written or other forms of notice.
B. Notice to the Media
In the event of a breach affecting more than 500 residents of a State or jurisdiction, we will, without unreasonable delay and in no case later than 60 calendar days after discovery of the breach, notify prominent media outlets serving the State or jurisdiction.
C. Notice to HHS
For breaches affecting fewer than 500 individuals, we are required to maintain an annual log of such breaches and provide a copy of such log to HHS within 60 days of the end of the calendar year. For breaches affecting 500 or more individuals, we are required to notify HHS at the same time notice is provided to the individual.
D. Law Enforcement Delay
Following a breach, we may delay transmission of any of the required forms of notice if we are informed by a law enforcement official that such notice would impede a criminal investigation or cause damage to national security.
We reserve the right to change this notice. We reserve the right to make changes to terms described in this notice and to make the new notice terms effective to all health/clinical information that ucpn maintains. We will post the new notice with the effective date in our facilities. In addition, we will offer you a copy of the revised notice at your next scheduled service-planning meeting.
If you believe your privacy rights have been violated:
All complaints must be submitted in writing. You will not be penalized for filing a complaint.
VERIFICATION OF RECEIPT OF HEALTH INFORMATION PRIVACY PRACTICES
By signature below, I verify that I have received a copy of the Health Information Privacy Practices of the United Cerebral Palsy Association of Nassau County, Inc. (ucpn).
________________________________________________ Collection and use of information We collect two kinds of information, site usage data, which is not individually identifiable, and individually identifiable information. Site usage data Our Web server automatically recognizes and collects the domain name of each visitor to our Web site. We collect information about visitors to our site, such as the number visitors, what pages they access, and the length of their visit. This information is used in aggregate form in order to manage our Web site and improve its content. Individually identifiable information We collect individually identifiable information about you when you choose to share information about yourself, for example, when you make a donation, request information or sign up to be an advocate. This information may include your postal or e-mail address, your telephone number and the type of disability you may have. Individually identifiable information is used to provide you with information or to deliver the service you have requested. If you provide your postal address, telephone number or e-mail address to ucpn online, you may receive periodic contact from us. If you would like to change the way we contact you, please fill out the Privacy Preference Form. At certain parts of some of our site, only persons who provide us with the requested personally identifiable information will be able to use tools or otherwise participate in the site’s activities and offerings. We also may collect certain non-personally identifiable information when you visit some Web pages or fill out forms such as the type of browser you are using (e.g., Netscapes Internet Explorer), the type of operating system you are using, (e.g., Windows ’95 or Mac OS) and the domain name of your Internet service provider (e.g., America Online and Earthlink). Some portions of our site provide special services and offer interactive tools that allow users to upload information for public consumption. In some cases, users can share experiences, give advice and connect with others. This privacy policy does not apply RA Connect. Pleas remember that chat rooms, message boards and personal page are public forums and personal information disclosed there will be seen by others. In addition, please exercise caution when posting information or providing information about yourself to others, especially contact information, such as street address, telephone number or email address. For more on the use of the RA Connect, please refer to the Frequently Asked Questions page for that section of the site. We use a technology called a “cookie “ to recognize you when you return to our site. Cookies help make your visit more convenient and enjoyable however, if you wish, you may direct your browser to reject cookies. For more information, see our Site Help Tips. Sharing Information with Others From time to time, ucpn may make our constituent mailing addresses available to other worthy nonprofit and commercial organizations whose services may be of interest to our supporters. We carefully screen these organizations. If you do not want us to share your postal address with other companies or organizations, please fill out the Privacy Preference Form. At times we may offer content (e.g., contests, sweepstakes, or promotions) that is sponsored by or co-branded with identified third parties. By virtue of these relationships, the third parties may obtain personally identifiable information that visitors voluntarily submit to participate in the site activity. ucpn has no control over the third – party’s use of this information. We will also share personal information when we believe release is appropriate to comply with the law, enforce our rights, or protect the safety of our users of others. We occasionally send out an email newsletter and direct email communications to Cerebral Palsy site visitors to highlight news, information and opportunities available from ucpn. You can elect not to receive communications from us, either by completing our privacy preference form or by noting your preference in response to communications from us. In addition, all ucpn e-newsletters and direct email communications have easy-to-follow unsubscribe instructions at the bottom of each email. Links to Other Sites Our site provides links to our Web sites where you can find out more about Services in the community. Please note that ucpn is not responsible for the information practices of linked sites. We encourage you to review the privacy policy of each site you visit. Children Online Protecting the privacy of the very young is especially important. For that reason, we adhere to the 1998 Children’s Online Privacy Protection Act (COPPA). (For more information, visit the Federal Trade Commission’s COPPA site at http://www.ftc.gov/bcp/conline/edcams/kidzprivacy/adults.htm.) In order to prevent unauthorized access and protect our user’s personal information, we strive to maintain physical, electronic and administrative safeguards to secure the information we collect online. For example, online shopping and contributions are processed using a secure server. This secure server software, SSL (Secure Sockets Layer), encrypts all information you input before it is sent to us. Furthermore, all the customer transactional data we collect is protected against unauthorized access with the use of digital certificates. If we decide to change our privacy policy, we will post those changes here. We encourage you to review our policy from time to time. Questions or Concerns Whenever you have any questions or concerns, please contact us through any media you prefer. Your complete satisfaction in dealing with ucpn is important to us. If you have questions about the United Cerebral Palsy Association of Nassau County, Inc., (ucpn) privacy practice described above, please send an e-mail message to . Thank you. If you have general questions about ucpn, please send messages to "A community can be judged by how they treat the neediest in their group. We should be proud of how we've addressed the needs of people with disabilities in our community." - Bob McGuire, Executive Director "A community can be judged by how they treat the neediest in their group. We should be proud of how we've addressed the needs of people with disabilities in our community." - Bob McGuire, Executive Director Video: Executive Director Bob McGuire sums up UCPN's mission - helping people with disabilities grow.
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The ucpn respects the privacy of each individual who contacts us. We are grateful for your support and the crucial role you play in helping us continue our valuable work. As part of our commitment to safe guarding your privacy we have adopted the online privacy policy outlined below. Cookies
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United Cerebral Palsy Association of Nassau County
Address:
380 Washington Avenue
Roosevelt, New York 11575-1899
Phone:
(516) 378-2000
Email:
You can Email Us your question and we will get back to you as soon as possible.
"A community can be judged by how they treat the neediest in their group. We should be proud of how we've addressed the needs of people with disabilities in our community."
- Bob McGuire, Executive Director
"A community can be judged by how they treat the neediest in their group. We should be proud of how we've addressed the needs of people with disabilities in our community."
- Bob McGuire, Executive Director
Video: See how your support makes a big difference in the lives of people with disabilities in our community.
Video: Meet Principal Dee Berger and witness the life-changing work of the Children's Learning Center.