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Polar Bears take the Plunge for ucpn!!

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8th Annual ucpn Polar Bear Plunge
March 11, 2012 
Theodore Roosevelt Park, Oyster Bay

The 8th Annual Polar Bear Plunge to benefit the United Cerebral Palsy Association of Nassau County, Inc. (ucpn) was held once again at the beautiful Theodore Roosevelt Park in Oyster Bay.  Honorary Co-Chairs John Venditto, Supervisor of the Town of Oyster Bay and Assemblyman Harvey Weisenberg from Long Beach, Chairmen Jack Sullivan & Frank Ozol, and the Polar Bear Committee worked hard to make this the best plunge ever!

We are extremely grateful to the volunteers from the Atlantic Steamer Fire Company who donated and served delicious hot dogs to the hungry crowd!!  DJ Danny Kelly was on hand to entertain the enthusiastic crowd and to keep our swimmers and fans warm there was plenty of good conversation shared over hot soup donated by H.R. Singleton's restaurant, hot coffee and tea donated by Dunkin' Donuts, hot chocolate donated by W. B Mason, Soda donated by Coca Cola Co., water donated by Superstar Beverage and cookies donated by Silver Lake Cookie Company!  KJOY's Street Team, Dave & Buster's Street Team, and SPARKY from the NY Isanders were on hand to entertain the crowd also!

The ucpn is grateful to John Venditto and the Town of Oyster Bay and it's amazing staff for hosting the Plunge, all the swimmers, sponsors, volunteers and to all those coming to show support! 

The Polar Bear Plunge is dedicated to the memory of Lenny Ferraro - Co-Chair.  Lenny Ferraro was instrumental in establishing the ucpn Polar Bear Plunge in 2005 and provided dedicated and tireless service to ucpn for over 25 years as a member of the Board of Directors and through enthusiastic work on numerous vital agency committees. Lenny, a true friend to all, passed away on December 1, 2008.  This Polar Bear Plunge and all to follow are dedicated in his honor and memory.

 

Photo Album: click on a photo to see it full size.

Numis

Shop www.shopnumis.com/ucpn and raise funds for ucpn!

SILVER COIN OF THE MONTH

As a member of this exclusive club, you will receive one of these beautiful treasures each and every month. Each coin is expertly selected from the world's leading government mints for its beauty and value.  Just imagine how big and valuable your collection would be if you had collected one silver coin each and every month for the past 5 years. You too can Create Wealth, Collect Wealth, and Preserve Wealth and have a lot of fun doing it.

Every three coins sold through the coin of the month club will generate a free coin to UPCN and all commissions generated through all sales benefit UCPN directly.

Go to www.shopnumis.com/ucpn for more information!

 

From the Executive Director - Winter 2012

Executive Director Message – Winter  2012

 

The ucpn faces challenges that exist in the world today with the same zest and attention that we have embraced for the past 64 years.  We believe in our mission of serving children and adults with disabilities in a manner that is respectful and inclusive.

 

Due to significant withdrawal of financial support that the state has embarked on for the last several years we have looked for alternative means to support important work done through the organization.

 

Ways ucpn is Working on Alternative Funding Sources

 

Some examples of these efforts include our continued work in Planned Giving which has netted the agency over $13 million from wills, bequests and annuities that will be realized in the future. To date, over $1 million has been received and our goal of $20 million in our endowment is well within our grasp.  We will establish an even greater long-term financial security through this process to insure that the children and younger people we serve now will have a viable, responsible organization to turn to when they reach their older years. 

 

Efforts to generate alternative financial support also include growth in our For-Profit Business, Rehab Solutions.  Our internet sales have seen steady, continued growth through 2011 that we envision continuing throughout 2012.  The durable medical equipment side of the business has seen tremendous growth in the last five months of 2011 and that is expected to continue in 2012.

 

The two sections of this for-profit business may well be the economic engine that will enable us to withstand the current reduction of financial reimbursement as well as future challenges.

 

We are also excited about our most recent involvement with ReWalk, the exoskeleton device that enables individuals here-to-fore confined to a wheelchair, to stand and to walk.  We are delighted to report that we have raised over $200K to help underwrite our clinic’s capacity to have an aggressive therapeutic intervention for this initiative.

 

Being the only site in the tri-state area that has the capacity to provide this therapeutic intervention, we are optimistic that we will attract a wider array of individuals to come to ucpn’s site to meet their needs.

 

ReWalk offers physical and psychological advantages that will enable an individual to experience better health and allow the State and Insurance companies to have significant reductions in expenditures.

 

Currently the ReWalk has FDA approval for institutional use only but we are hopeful that the FDA will approve the ReWalk in the near future for personal use allowing for individuals to enjoy the benefits at home, on the job or in their community.  If you would like to learn more about the ReWalk go to www.ucpn.org or call Ellen Naidus at 516-378-2000 ext 285.

 

Concerns about NYS Partnership and New Government Initiatives

 

We are very excited and pleased about some of our initiatives yet we are very concerned about the direction that NYS is taking with regard to the structure of our business relationships.

 

NYS is working with the Federal Government creating a 1115 Waiver that will bring managed care (with capitation) to our current system.  Pilot projects are expected to begin in April 2012 and yet basic questions regarding the development of the infrastructure to support such a venture remain unanswered.  The State has gone on record that they do not believe the current system is financially sustainable and that is their solution.  Over the past 40 years, NYS has partnered very successfully with not-for-profit agencies like ours to create responsive and responsible programs and services.

Executive Director Message – Winter  2012

 

The ucpn faces challenges that exist in the world today with the same zest and attention that we have embraced for the past 64 years.  We believe in our mission of serving children and adults with disabilities in a manner that is respectful and inclusive.

 

Due to significant withdrawal of financial support that the state has embarked on for the last several years we have looked for alternative means to support important work done through the organization.

 

Ways ucpn is Working on Alternative Funding Sources

 

Some examples of these efforts include our continued work in Planned Giving which has netted the agency over $13 million from wills, bequests and annuities that will be realized in the future. To date, over $1 million has been received and our goal of $20 million in our endowment is well within our grasp.  We will establish an even greater long-term financial security through this process to insure that the children and younger people we serve now will have a viable, responsible organization to turn to when they reach their older years. 

 

Efforts to generate alternative financial support also include growth in our For-Profit Business, Rehab Solutions.  Our internet sales have seen steady, continued growth through 2011 that we envision continuing throughout 2012.  The durable medical equipment side of the business has seen tremendous growth in the last five months of 2011 and that is expected to continue in 2012.

 

The two sections of this for-profit business may well be the economic engine that will enable us to withstand the current reduction of financial reimbursement as well as future challenges.

 

We are also excited about our most recent involvement with ReWalk, the exoskeleton device that enables individuals here-to-fore confined to a wheelchair, to stand and to walk.  We are delighted to report that we have raised over $200K to help underwrite our clinic’s capacity to have an aggressive therapeutic intervention for this initiative.

 

Being the only site in the tri-state area that has the capacity to provide this therapeutic intervention, we are optimistic that we will attract a wider array of individuals to come to ucpn’s site to meet their needs.

 

ReWalk offers physical and psychological advantages that will enable an individual to experience better health and allow the State and Insurance companies to have significant reductions in expenditures.

 

Currently the ReWalk has FDA approval for institutional use only but we are hopeful that the FDA will approve the ReWalk in the near future for personal use allowing for individuals to enjoy the benefits at home, on the job or in their community.  If you would like to learn more about the ReWalk go to www.ucpn.org or call Ellen Naidus at 516-378-2000 ext 285.

 

Concerns about NYS Partnership and New Government Initiatives

 

We are very excited and pleased about some of our initiatives yet we are very concerned about the direction that NYS is taking with regard to the structure of our business relationships.

 

NYS is working with the Federal Government creating a 1115 Waiver that will bring managed care (with capitation) to our current system.  Pilot projects are expected to begin in April 2012 and yet basic questions regarding the development of the infrastructure to support such a venture remain unanswered.  The State has gone on record that they do not believe the current system is financially sustainable and that is their solution.  Over the past 40 years, NYS has partnered very successfully with not-for-profit agencies like ours to create responsive and responsible programs and services.

 

Many staff, families and participants have expressed concern and fear that this mutually beneficial partnership with the state is changing drastically, and not for the better.  I share these concerns and can only hope that as this unfolds the State remains sensitive and responsible to its most vulnerable citizens.

 

Thank you for your interest in our agency’s happenings.  Should you have any questions please call me at 516-377-2030.

Irish Splendor with ucpn!

"IRISH SPLENDOR"
presented by ucpn

Join us for this amazing trip!

December 3 - 10, 2012


Click here for more exciting information!

 

From the Executive Director - Fall 2011

We have always had a history of being respectful and responsive at ucpn when it comes to the needs and interests of our consumers and their families.  In keeping with our mission, we as an organization strive to ensure that all our efforts have a positive effect on the lives of the children and adults we serve.  We work hard to assure the rights and entitlements of all people challenged by disabilities.

 

As we continue our work in providing the vital services our children and adults depend on, it is evident that the state of affairs in government is one of change and concern.  The recent budget cuts and reductions in reimbursement are posing threats and challenges that endanger our ability to maintain the standards of quality care we are committed to provide. 

 

To paraphrase what Martin Luther King wrote in 1954 as he reflected from a Birmingham jail, we all recognize the need for sinners to repent before they meet their Maker. We wonder though, about what is in store for all the good people who seemingly lead virtuous lives but are silent when it comes to standing up for those whose rights and freedoms have been denied. 

 

I urge you to speak up for the rights of the most vulnerable members of our society.  We cannot be silent when we see that basic human rights are being endangered for individuals with disabilities.  Our voices have the potential for positive change and protection for the children and adults we serve. These individuals who are our family members and our friends need our collective voices.  The people who teach us invaluable lessons every day about courage, determination and patience need our uncompromising support.

 

Please recognize the contributions that people challenged by disabilities make in our world today.  Reject the notion that the correction of our troubled economy should be on the backs of individuals with disabilities and their families.  Act today.  Speak out.  Make your representatives in government aware of your concerns and force them to work for solutions that insure that the lives of children and adults with disabilities continue to include the vital services and programs they need and have a right to expect.

 

The partnership between families and not-for-profits and the state is at risk.  We cannot sit idly by and let things disintegrate.  If you need advice about what to say or exactly who to contact, do not hestitate to contact me and I will provide the tools and direction you need.

The ReWalk at ucpn’s Fortunoff Treatment and Rehabilitation Center

The ReWalk™ at ucpn’s Fortunoff Treatment and Rehabilitation Center.

 

 

The dream of walking is now a reality at ucpn. 

We are very pleased to announce an exciting new opportunity available at ucpn: ReWalk™.   

The ReWalk™ - General Description

 

ReWalk™ is an alternative therapeutic modality and a mobility opportunity for individuals who utilize a wheelchair.  A user in the ReWalk™ has potential to stand and walk.

 

ReWalk™ is a new realization of the powered exoskeleton concept and provides user-initiated mobility. It consists of a light wearable brace support suit, which integrates actuation motors at the joints. A light weight backpack, worn by the user, contains a computer based control system and rechargeable batteries.

 

Medical and Therapeutic Assessments

 

The user is actively involved and has control of all mobility functions, through unique control processes. Walking is controlled through subtle changes in center of gravity; stability and safety are secured by use of crutches.

 

Basic Prerequisites:

·         Ability to use hands and shoulders (balancing and walking with crutches)

·         Height range: 5’3” to 6’3”

·         Maximum weight: 220 pounds

·         Healthy cardiovascular system and bone density

 

Important to Note

·         Currently, the ReWalk™ has FDA approval for institutional use only.  It allows institutions, clinical settings, such as ucpn’s Fortunoff Treatment and Rehabilitation Center, to use the ReWalk™ as a therapeutic and physical training device. 

·         The ReWalk-P™, for personal use, is expected to be available in 2012.

 

To quote a popular idiom: A picture is worth a thousand words.  See the ReWalk in action on the following websites: http://www.argomedtec.com/ and http://rewalk.us/.  The ReWalk was also highlighted on the television show, Glee. You can tune into the episode: http://www.youtube.com/watch?v=IaiO8a1ZY5g.

 

If you are interested in pursuing the opportunity to use the ReWalk, please print, fill out, fax to 516-377-2066 or scan and return the attached ReWalk Clinical Intake Form to . 

 

Thank you.

The ReWalk Team at ucpn’s Fortunoff Treatment and Rehabilitation Center

REWALK BROCHURE

Judge Anthony Parga: Friend of ucpn

Judge Anthony Parga: Friend of ucpn

 

Judge Anthony Parga is currently a member of the New York State Supreme Court.  Long active in his profession and community Justice Parga serves as a Special Professor of Law at Hofstra Law School. He is a member of the Nassau County and New York State Bar Associations as well as the Columbian Lawyers of Nassau County, and the Nassau Lawyers Association. Justice Parga is a Director on the Board of Directors of the United Cerebral Palsy Association of Nassau County. The Long Beach Lawyers' Association honored Judge Parga as "Judge of the Year" at their annual dinner in June, 2011.

 

As a child, Anthony Parga attended day treatment programs at ucpn in the basement of the Baptist Church on Nassau Road in Roosevelt before the current facility was acquired. According to Justice Parga, “I was fortunate to have parents who were founding members of ucpn and who advocated strongly on my behalf. I attended public schools in Syosset in an era before the advent of special education, Section 504, or IDEA. Not a pleasant experience but one that prepared me well to face future hurdles in life.”

 

Currently serving on the Board of Directors of ucpn, Justice Parga comments, “While I am proud of how far we've come since I was a child at ucpn, the current fiscal and political situation demonstrate that we must never let down our guard.”

 

Before beginning his legal career, Justice Parga was a bilingual caseworker for the Nassau County Department of Social Services where he assisted Spanish speaking clients trying to access the County’s programs to provide food, clothing, housing,  employment and medical services for persons and families in need..

 

Justice Parga has earned graduate degrees in Public Administration from Harvard and Education from Long Island University. A graduate of Marist College, he earned his law degree at Hofstra Law School.                                      

 

Justice Parga has served with distinction as an attorney in all the major trial courts in Nassau County. He served as a Deputy Town Attorney for the Town of Oyster Bay and then as a Principal Court Attorney in the Nassau County District Court. He also served as law secretary to three State Supreme Court Justices as well as a Nassau County Court Judge.

 

In 1992 Justice Parga was elected to the Nassau County District Court and then in 1997 he was elected to the New York State Supreme Court. The same court to which he now seeks re-election.

 

Justice Parga is a lifelong resident of Syosset with his wife Janet where they raised their two children Anthony and Joanna.

The 2011 Thunderbolts

Thunderbolts News

 

The Thunderbolts excelled in the 2011 National Boccia competition held in Chicago:

 

The Pairs:

Howie Cohen, Charlie Fleisch, Mark Paramidani won Silver.

Michael Salerno and an athlete from Atlanta won Bronze

 

In Individual Play:

Charlie Fleisch  won Silver after a hard fought battle with the number two seed in the country (Charlie won 8-1).

Rafael DeJesus ( an athlete that has been on Thunderbolts for only two years) won Bronze in throwers division.

 

Mary C. Hodge, Head Coach proudly states, “Congratulations to all the athletes......you made ucpn and the Nassau Thunderbolts proud. Thank you to the coaches: Will Lowry, Troy McPherson, Jim Thomson, Ken Siderine and Sean Wachsberger ...especially when the hotel power was out on the first day of play, all the athletes looked great and were ready to play thanks to your efforts.”

 

USA Para Pan American Games

Coach Hodge is also pleased to announce that two of the Nassau Thunderbolts have been nominated to play in the USA Para Pan American Games representing Team USA in Guadalajara, Mexico.

 

Charlie Fleisch was nominated as the number two player for the ramp BC3 division in Boccia!

 

Rafael DeJesus was nominated as the first alternate in the BC2 or Throwers division in Boccia.

 

Congratulations to both of them....more to come as the USA Team is named in a few weeks!

 

For more info and photos, go to

www.blazesports.org

“Gifts Anyone Can Afford!”

ADDING VALUE TO YOUR CHARITABLE GIFT
(For more information see Planned Giving Brochures Below)

"Did You Know Giving Stock Can Be More Beneficial Than Giving Cash?"

"Make a Gift of Real Estate, Transfer the Burden and Expense of Managing a Property and Get a Deduction and Reduce Your Taxable Estate"

Planned Giving and Estate Planning are the most cost-effective means of promoting and securing major gifts to ucpn to help build its endowment and its future. This form of charitable giving provides a gift in two ways—the charity receives the financial assistance it needs to operate and the donor receives the peace of mind that they are protecting their valuable assets from income and estate taxes.

There are many vehicles that can be beneficial to ucpn and to your family. One of the easiest ways is supporting ucpn through your will by establishing a bequest. There are four easy ways to accomplish this scenario. The first is a general bequest of a certain percentage of your estate coming to ucpn . The second is a residuary bequest that allows ucpn to receive the remainder of your estate after all specific bequests have been made. The third is a contingent bequest that provides for the distribution of property in the event one or more of your named beneficiaries does not survive you. The final one is the life income bequest that will provide your loved ones a lifetime income, while it assures an eventual gift to ucpn.

Another great way to help ucpn is through a gift annuity. This allows the donor to receive a substantially larger return over the life of this gift. Annuity payments can be made to one or two person and present rates are usually 4 to 8% more than bank certificates. The donor also receives an immediate tax benefit and the annuity income may be tax-free. The rates are set by an actuary and require a minimum of $5,000. The interest rate is based on the age of the donor and the donor must be at least 50-years of age.

As you can see there are many options out there. If you are interested please contact Charles Evdos, ucpn Director of Development at (516) 378-2000 x648 or email him at : . He will be happy to assist in answering your questions.
 

ucpn Planned Giving Updates and Q & A

 By making a gift to ucpn in your estate plan, you can continue to help us to enhance the lives of people with developmental disabilities well into the future.  In addition to this opportunity to make a difference, there may also be tax benefits to these gifts.  Meet with your financial professional to learn more.

 New Law: Use Your IRA to Give to ucpn.

 Recently, the President signed a law that provides a new opportunity for donors who are 70 ½ or older to support causes like ucpn.

 Under the new law you can transfer funds from your IRA account tax-free to ucpn. For 2007 only, you do not have to pay income tax on the IRA transfer.  This is a great way to support ucpn and avoid taxable income using your IRA distribution. 

You may contribute IRA funds without paying federal incomes taxes if: 

·        You are 70 ½ or older

·        The gift is $100,000 or less each year

·        You make the gift on or before December 31 in 2006 or 2007

·        Your IRA custodian transfers funds directly from an IRA or Rollover IRA to ucpn.

Contact you IRA custodian to transfer the amount you wish to ucpn.  It is wise to consult your tax professional before making your gift. 

Charles Evdos, Director of Development, ucpn
380 Washington Avenue, Roosevelt, New York 11575
516-378-2000x648

E-mail: /www.ucpn.org 

Frequently Asked Question about Estate Planning and Planned Giving 

1)      I need to write a Will.  Can ucpn help me?

2)      How do I include ucpn in my Will or Living Trust?

3)      What’s the big advantage in making ucpn a beneficiary of my retirement plan?

4)      What kind of donors should consider a charitable remainder Trust?

5)      How does ucpn Pooled Income Fund  

6)      How can I give my home and keep it, too?

7)      What should I do if I have remembered ucpn in my estate plan? 

Q. I need to write a Will.  Can ucpn help me? 

A. Yes. Just ask for or free Estate-Planning Kit.  The Kit includes: 

·        An Estate Planning Inventory Form, to help you help you a clearer idea of the worth of your estate.

·        Information on how to remember ucpn for Independence in your will

·        Estate Planning: Getting Started, a brochure

·        Revocable Living Trusts, a brochure 

Effective Estate Planning usually takes time, effort and a good attorney.  In the end your plan will allow your family to avoid the delay, dissension and needless expense that often occurs when a loved one dies without a Will.  Once you have taken care of your family’s needs, please consider a thoughtful bequest to ucpn.  

To order your Estate Planning Kit, call Charles Evdos, Director of Development ucpn at 516-378-2000 on extension 648 or send him an email at and/or log on to our website http://www.ucpn.org.  

Q. How do I include ucpn in my Will or Living Trust?  

A. The most common way people remember ucpn in a Will or Living Trust is through a charitable bequests.  You do not have to rewrite your current documents.  You simply add an amendment, called a codicil, to your Will or Living Trust.  Here is some suggested language you can have your attorney review: 

“I give and bequeath to ucpn, located at 380 Washington Ave, Roosevelt, New York, 11575,

------% of my estate” (or state a specific dollar amount, or describe real of personal property, including exact location). 

Your bequest is entirely under your control during life and becomes irrevocable only at death.  If you have questions about bequests, call Charles Evdos, Director of Development at 516-378-2000 on extension 648 or email him at and/or log on to our website http://www.ucpn.org.   

Q. What’s the big advantage in making ucpn a beneficiary of my retirement plan?  

A. A designation in your IRA or other retirement plan may be a very cost-effective way of making a gift to ucpn.  If you leave your retirement plan to your children, they will have to pay income tax on either a lump sum distribution or the income stream from the plan. ucpn does not pay this tax.  Here’s an example of what this can mean to your heirs: 

A widower died a few years ago.  He left his $300,000 house to charity and his $300,000 retirement plan to his relatives.  He should have done just the opposite.  The relatives had to pay income tax on the $300,00 in the retirement plan, an $80,000 cost to them.  If they had received the home, and the charity had received the retirement plan payment, no one would have paid income tax.  For more information on the advantages of retirement gifts to ucpn, call Charles Evdos, Director of Development, ucpn at 516-378-2000 on extension 648 or email him at . and/or log on to our website: http://www.ucpn.org.  

Q. What kind of donors should consider a charitable remainder trust? 

A. Donors who need a device that will pay them for life, allow them to bypass capital gains tax on stock or real estate, reduce estate tax, and give them the satisfaction of providing for a good cause like ucpn. 

Anything you place in a charitable trust—cash, stock, real estate—is invested by the trustee to pay you income for the rest of your life and, if you wish, pay your heirs for life of for a term of years.  After the death of all income beneficiaries, what remains in the trust passes to ucpn. 

Your Trust may provide you with some important tax benefits: 

1.      An immediate income tax deduction for a percentage of your gift.

We will be happy to give you an idea of the size of your deduction.  We simply need to know the amount to be placed in the trust, the ages of the income beneficiary (ies) and the payment rate of the trust. 

2.      No tax on the sale of appreciated property.  From the donor’s point of view, this is often the most important tax benefit.  Sometimes thousands of dollars that would have gone in capital gains taxes remain in the trust to generate payments to the income beneficiaries. 

3.      The Trust principal is not subject to estate tax.  Property that might otherwise be subject to federal estate tax, which can be has high as 55%, is preserved from estate tax entirely.   

Appreciated real estate is often an excellent asset to place in a charitable trust.  Mature investment properties are frequently earning only two, three, or four percent of their fair market value per year.  When these properties are sold and the proceeds reinvested by the trust, earnings often increase significantly. 

Under ordinary circumstances, owners face substantial capital gains taxes when they sell rental properties or commercial real estate.  In some cases personal residences are also subject to capital gains taxes even after the $500,000 exemption has been used.  In any case, because your charitable trust will be selling the property, there will be no capital gains taxes due when the real estate is sold.  Thus the entire proceeds of sale can be reinvested to produce more income for you.  

Some people find it useful to give an undivided percentage interest of their property into a charitable trust rather than all of it.   For example a donor placed 75% of a vacant lot into a charitable trust.  When the lot was sold, about $70,000 came directly to her from the sale while $210,000 remained in the trust.  Some of their $70,000 was taxable, but they used the income tax deduction generated by their gift to the trust to offset the tax due on the gain built into the $70,000 they received. 

Gifts of appreciated stock are ideal for funding a charitable remainder trust because the stock can be reinvested by the trust for greater income while bypassing capital gains taxes at the time of the sale. 

The simplest way to gain these benefits with gifts of cash or stock is to open a pooled income fund account benefiting ucpn.  It’s as simple as opening a saving account, and an account can be started with as little as $5,000.  Like contributions to an individual trust, gifts to the pooled income fund give donors an immediate income tax deduction and lifetime income.  Ask us for our pooled income fund disclosure statement before contributing.  

Finally, your trust must have a trustee.  If you have an individual trust tailored to your circumstances, the trustee can be a commercial institution such as a bank or trust company, an individual with professional experience in trust management, a relative, or yourself.  There are some complications in acting as trustee yourself, but it can be done if you understand and comply with IRS regulations.  ucpn will be happy to supply you with a list of possible trustees of information on being your own trustees. 

The basic advantages of charitable trusts are not difficult to understand:  

·        Diversification of your assets without incurring capital gains taxes,

·        Lifetime income,

·        Immediate income tax benefits,

·        Reduction of estate tax,

·        The satisfaction of providing for a good cause. 

There are even ways these trusts can benefit your heirs that we have not covered.  But first thing you should do is find out if a charitable trust makes sense for you. 

ucpn will provide you with tax and income calculations tailored to your particular situation.  This will give you and your advisors the information needed to make an informed decision as to whether a charitable trust meets your financial and philanthropic objectives.  All information is provided confidentially and without cost or obligation. ucpn deeply appreciates your willingness to help continue its work. 

For a personalized analysis call Charles Evdos, Director of Development at (516) 378-2000 on extension 648 and/or send an email, . 

Q. How can I give my home and keep it, too? 

A. A charitable life tenancy agreement allows you to give a personal residence or farm to ucpn while retaining the right to live there for life.  Donors who enter a life tenancy agreement receive an immediate income tax deduction.  The deduction is based on the present value of the home discounted by the estimated length of time the charity must wait to receive the home.  To put it simply, a person age 70 will receive a larger deduction than will a person age 50.   

The IRS grants the deduction even though the donor continues to enjoy full use of the home.  But the IRS also expects the owner to have full responsibility for the care and maintenance of the home.  That’s why life tenancy agreements simply continues things as they are currently, with the donor dealing with maintenance, property taxes, insurance and the like.  The major benefits to the donor, then are continued use of the home, an immediate charitable income tax deduction, the avoidance of probate, the avoidance of estate tax on the property, and the satisfaction of making a substantial gift to ucpn during one’s lifetime.  For further information call Charles Evdos, Director of Development at (516) 378-2000 on extension 648 and/or send an email .  

Q. What is ucpn Heritage Society? 

A. ucpn created this society to honor those who have remembered the organization in their estate plans through thoughtful bequests and other planned gifts.  Those who do allow us to use their names will be recognized in the ucpn Annual Report.  All members receive a commemorative award and are invited to special ucpn events. 

Q. What should I do if I have remembered ucpn in my estate plan? 

A. We would be honored to enroll you in ucpn Heritage Society, so please let us know of your bequest by calling Charles Evdos, Director of Development at (516) 378-2000 on extension 648 and/or send an email .  

WILLS (Part 1)

WILLS (Part 2)

GIFTS (Part 1)

GIFTS (Part 2)

FAR SIGHT (Part 1)

FAR SIGHT (Part 2)

TAX IDEAS (Part 1)

TAX IDEAS (Part 2)

ucpn Speech and Language Therapist Gets Makeover!

Identical twins, Sarah Wingenfeld, a Speech and Language Therapist at ucpn and sister Jessie, 29 years-old, a special education teacher, were recently selected by NBC-TV to receive a makeover in New York City.  Pat Quinn from ucpn’s Development department heard that the station was looking for twins and contacted Sarah.  The sisters agreed that they were open to getting brand new looks to change their appearance basically for the very first time in their lives!  A limousine whisked the sisters from Long Island to elegant 5th Avenue to the world-famous Louis Licari Salon where the sisters were treated to new haircuts and haircolor as well as new fashions chosen for just them by a stylist.  The sisters thoroughly enjoyed the day and were thrilled with their new looks.  When Sarah returned the next day to ucpn, she was greeted by her colleagues in the Speech and language department and by many of the students from the Children’s Learning Center.  Sarah’s office had been decorated by her co-workers to reflect her new celebrity status and she was welcomed with “oohs” and “aahs” from all who loved her new look.  See the transformation here…

 

ucpn Speech and Language Therapist Gets Makeover!

ucpn Planned Giving Updates and Q & A

ucpn Planned Giving Updates and Q & A

 By making a gift to ucpn in your estate plan, you can continue to help us to enhance the lives of people with developmental disabilities well into the future.  In addition to this opportunity to make a difference, there may also be tax benefits to these gifts.  Meet with your financial professional to learn more.

 New Law: Use Your IRA to Give to ucpn.

 Recently, the President signed a law that provides a new opportunity for donors who are 70 ½ or older to support causes like ucpn.

 Under the new law you can transfer funds from your IRA account tax-free to ucpn. For 2007 only, you do not have to pay income tax on the IRA transfer.  This is a great way to support ucpn and avoid taxable income using your IRA distribution. 

You may contribute IRA funds without paying federal incomes taxes if: 

·        You are 70 ½ or older

·        The gift is $100,000 or less each year

·        You make the gift on or before December 31 in 2006 or 2007

·        Your IRA custodian transfers funds directly from an IRA or Rollover IRA to ucpn.

Contact you IRA custodian to transfer the amount you wish to ucpn.  It is wise to consult your tax professional before making your gift. 

Charles Evdos, Director of Development, ucpn
380 Washington Avenue, Roosevelt, New York 11575
516-378-2000x648

E-mail: /www.ucpn.org 

Frequently Asked Question about Estate Planning and Planned Giving 

1)      I need to write a Will.  Can ucpn help me?

2)      How do I include ucpn in my Will or Living Trust?

3)      What’s the big advantage in making ucpn a beneficiary of my retirement plan?

4)      What kind of donors should consider a charitable remainder Trust?

5)      How does ucpn Pooled Income Fund  

6)      How can I give my home and keep it, too?

7)      What should I do if I have remembered ucpn in my estate plan? 

Q. I need to write a Will.  Can ucpn help me? 

A. Yes. Just ask for or free Estate-Planning Kit.  The Kit includes: 

·        An Estate Planning Inventory Form, to help you help you a clearer idea of the worth of your estate.

·        Information on how to remember ucpn for Independence in your will

·        Estate Planning: Getting Started, a brochure

·        Revocable Living Trusts, a brochure 

Effective Estate Planning usually takes time, effort and a good attorney.  In the end your plan will allow your family to avoid the delay, dissension and needless expense that often occurs when a loved one dies without a Will.  Once you have taken care of your family’s needs, please consider a thoughtful bequest to ucpn.  

To order your Estate Planning Kit, call Charles Evdos, Director of Development ucpn at 516-378-2000 on extension 648 or send him an email at and/or log on to our website http://www.ucpn.org.  

Q. How do I include ucpn in my Will or Living Trust?  

A. The most common way people remember ucpn in a Will or Living Trust is through a charitable bequests.  You do not have to rewrite your current documents.  You simply add an amendment, called a codicil, to your Will or Living Trust.  Here is some suggested language you can have your attorney review: 

“I give and bequeath to ucpn, located at 380 Washington Ave, Roosevelt, New York, 11575,

------% of my estate” (or state a specific dollar amount, or describe real of personal property, including exact location). 

Your bequest is entirely under your control during life and becomes irrevocable only at death.  If you have questions about bequests, call Charles Evdos, Director of Development at 516-378-2000 on extension 648 or email him at and/or log on to our website http://www.ucpn.org.   

Q. What’s the big advantage in making ucpn a beneficiary of my retirement plan?  

A. A designation in your IRA or other retirement plan may be a very cost-effective way of making a gift to ucpn.  If you leave your retirement plan to your children, they will have to pay income tax on either a lump sum distribution or the income stream from the plan. ucpn does not pay this tax.  Here’s an example of what this can mean to your heirs: 

A widower died a few years ago.  He left his $300,000 house to charity and his $300,000 retirement plan to his relatives.  He should have done just the opposite.  The relatives had to pay income tax on the $300,00 in the retirement plan, an $80,000 cost to them.  If they had received the home, and the charity had received the retirement plan payment, no one would have paid income tax.  For more information on the advantages of retirement gifts to ucpn, call Charles Evdos, Director of Development, ucpn at 516-378-2000 on extension 648 or email him at . and/or log on to our website: http://www.ucpn.org.  

Q. What kind of donors should consider a charitable remainder trust? 

A. Donors who need a device that will pay them for life, allow them to bypass capital gains tax on stock or real estate, reduce estate tax, and give them the satisfaction of providing for a good cause like ucpn. 

Anything you place in a charitable trust—cash, stock, real estate—is invested by the trustee to pay you income for the rest of your life and, if you wish, pay your heirs for life of for a term of years.  After the death of all income beneficiaries, what remains in the trust passes to ucpn. 

Your Trust may provide you with some important tax benefits: 

1.      An immediate income tax deduction for a percentage of your gift.

We will be happy to give you an idea of the size of your deduction.  We simply need to know the amount to be placed in the trust, the ages of the income beneficiary (ies) and the payment rate of the trust. 

2.      No tax on the sale of appreciated property.  From the donor’s point of view, this is often the most important tax benefit.  Sometimes thousands of dollars that would have gone in capital gains taxes remain in the trust to generate payments to the income beneficiaries. 

3.      The Trust principal is not subject to estate tax.  Property that might otherwise be subject to federal estate tax, which can be has high as 55%, is preserved from estate tax entirely.   

Appreciated real estate is often an excellent asset to place in a charitable trust.  Mature investment properties are frequently earning only two, three, or four percent of their fair market value per year.  When these properties are sold and the proceeds reinvested by the trust, earnings often increase significantly. 

Under ordinary circumstances, owners face substantial capital gains taxes when they sell rental properties or commercial real estate.  In some cases personal residences are also subject to capital gains taxes even after the $500,000 exemption has been used.  In any case, because your charitable trust will be selling the property, there will be no capital gains taxes due when the real estate is sold.  Thus the entire proceeds of sale can be reinvested to produce more income for you.  

Some people find it useful to give an undivided percentage interest of their property into a charitable trust rather than all of it.   For example a donor placed 75% of a vacant lot into a charitable trust.  When the lot was sold, about $70,000 came directly to her from the sale while $210,000 remained in the trust.  Some of their $70,000 was taxable, but they used the income tax deduction generated by their gift to the trust to offset the tax due on the gain built into the $70,000 they received. 

Gifts of appreciated stock are ideal for funding a charitable remainder trust because the stock can be reinvested by the trust for greater income while bypassing capital gains taxes at the time of the sale. 

The simplest way to gain these benefits with gifts of cash or stock is to open a pooled income fund account benefiting ucpn.  It’s as simple as opening a saving account, and an account can be started with as little as $5,000.  Like contributions to an individual trust, gifts to the pooled income fund give donors an immediate income tax deduction and lifetime income.  Ask us for our pooled income fund disclosure statement before contributing.  

Finally, your trust must have a trustee.  If you have an individual trust tailored to your circumstances, the trustee can be a commercial institution such as a bank or trust company, an individual with professional experience in trust management, a relative, or yourself.  There are some complications in acting as trustee yourself, but it can be done if you understand and comply with IRS regulations.  ucpn will be happy to supply you with a list of possible trustees of information on being your own trustees. 

The basic advantages of charitable trusts are not difficult to understand:  

·        Diversification of your assets without incurring capital gains taxes,

·        Lifetime income,

·        Immediate income tax benefits,

·        Reduction of estate tax,

·        The satisfaction of providing for a good cause. 

There are even ways these trusts can benefit your heirs that we have not covered.  But first thing you should do is find out if a charitable trust makes sense for you. 

ucpn will provide you with tax and income calculations tailored to your particular situation.  This will give you and your advisors the information needed to make an informed decision as to whether a charitable trust meets your financial and philanthropic objectives.  All information is provided confidentially and without cost or obligation. ucpn deeply appreciates your willingness to help continue its work. 

For a personalized analysis call Charles Evdos, Director of Development at (516) 378-2000 on extension 648 and/or send an email, . 

Q. How can I give my home and keep it, too? 

A. A charitable life tenancy agreement allows you to give a personal residence or farm to ucpn while retaining the right to live there for life.  Donors who enter a life tenancy agreement receive an immediate income tax deduction.  The deduction is based on the present value of the home discounted by the estimated length of time the charity must wait to receive the home.  To put it simply, a person age 70 will receive a larger deduction than will a person age 50.   

The IRS grants the deduction even though the donor continues to enjoy full use of the home.  But the IRS also expects the owner to have full responsibility for the care and maintenance of the home.  That’s why life tenancy agreements simply continues things as they are currently, with the donor dealing with maintenance, property taxes, insurance and the like.  The major benefits to the donor, then are continued use of the home, an immediate charitable income tax deduction, the avoidance of probate, the avoidance of estate tax on the property, and the satisfaction of making a substantial gift to ucpn during one’s lifetime.  For further information call Charles Evdos, Director of Development at (516) 378-2000 on extension 648 and/or send an email .  

Q. What is ucpn Heritage Society? 

A. ucpn created this society to honor those who have remembered the organization in their estate plans through thoughtful bequests and other planned gifts.  Those who do allow us to use their names will be recognized in the ucpn Annual Report.  All members receive a commemorative award and are invited to special ucpn events. 

Q. What should I do if I have remembered ucpn in my estate plan? 

A. We would be honored to enroll you in ucpn Heritage Society, so please let us know of your bequest by calling Charles Evdos, Director of Development at (516) 378-2000 on extension 648 and/or send an email .  

WILLS (Part 1)

WILLS (Part 2)

GIFTS (Part 1)

GIFTS (Part 2)

FAR SIGHT (Part 1)

FAR SIGHT (Part 2)

TAX IDEAS (Part 1)

TAX IDEAS (Part 2)

From Little Girl to Remarkable Young Lady!

From Little Girl to Remarkable Young Lady,
a Girl Scout Grows Up and Hopes to Help Many at ucpn

By: Adriana Ramirez

Like the staff and supporters of the United Cerebral Palsy Association of Nassau County, Inc. (ucpn), the Girl Scouts of the U.S.A. have consistently been ambassadors for empowerment and independence. Internationally and locally, they have continuously given back to the community-at-large, volunteering their precious time while bringing smiles to others. Recently, one local Girl Scout has graced ucpn, bringing some special for agency participants.

Jacqueline Cosgrove, age 16, is an ambitious student at Garden City High School and a committed member of Troop 1443.  As she has grown from child to teenager, Jacqueline continues to have a caring and good-natured spirit. Now, on a quest to obtain her Gold Award, the most prestigious of Girl Scout honors, Jacqueline has decided to collect ambulatory equipment for ucpn, St. Anne’s Church, and the Met Council of The Bronx.

With high hopes to recycle a variety of devices, Jacqueline states: “My project will help alleviate the burden of purchasing these costly items for people in need.” With the desire to gather wheelchairs, canes, walkers, and crutches, Jacqueline spread the word of her pursuit with a published letter to the editor of Garden City News, a community newspaper. Her donation request was well-received and resulted in received two large deliveries of ambulatory devices to ucpn to date.

Having been familiar with ucpn since childhood, Jacqueline chose this agency to benefit from her project. Raised in Garden City with parents, Maryanne and John, Jacqueline annually attended The Sugar Plum Ball with her father. This annual ucpn event, designed for fathers and daughters, set the stage for the Cosgroves to dance and dine while helping raise funds for the agency.

Jacqueline hopes the donated equipment will assist individuals who may not have had access to them due to their high cost.  In addition, she states: “My project will also exemplify the need to recycle and keep our environment free from objects that can be reused.” This Gold Award project not only proves Jacqueline’s compassion, but it also showcases her pledge to better the world as a whole.

The Girl Scout mission strives to “build girls of courage, confidence, and character, who make the world a better place” (Girl Scouts of the U.S.A). Jacqueline’s story epitomizes this mission, reminding us in moments of concern or fear that empathy continues to blossom in our society. And it is such empathy that will keep us moving forward to the bright and hopeful future.

The 29th Annual ucpn Golf & Tennis Tournament

Dear Friend of ucpn:

Bo Dietl, pictured here, is being honored by the United Cerebral Palsy Association of Nassau County, Inc. at the 29th Annual Golf & Tennis Tournament to be held on August 4, 2011.

Bo and I first met as rookie cops in the NYPD.  The year was 1970 and we were both arraigning prisoners in Manhattan Criminal Court. Over forty years later, I can clearly remember the enthusiasm and dedication Bo displayed for his job. I knew he wasn’t your run of the mill cop. He was someone special. Later, while working undercover in the Elite Street Crime Unit, Bo was mugged over 500 times and sustained countless injuries while apprehending many dangerous suspects. In the late 1970's, I was assigned to the NYPD's Organized Crime Control Bureau, Narcotics Division, and worked in all of the five boroughs. Not a night went by that my partners and I wouldn't see Bo dressed as a homeless person lying on the sidewalk near a subway entrance with money hanging out of his pocket, waiting for some unsuspecting criminal to try and rob him.

Bo was later promoted to Detective and assigned to work in NYPD's Homicide Squad where he solved some of the city’s most highly publicized cases. As one of the most decorated Police Officers in NYPD history, Bo’s career was cut short after a skydiving accident. In 1985, Bo founded and operated one of the most prestigious private investigation companies in the United States, which made him my competitor. This did not in any way strain our relationship, and as always, we continued to support each other and remained the best of friends.

His success did not end there. Bo became a contributing analyst for Fox News and a regular on the Don Imus Show every Monday morning. Bo wrote his autobiography, which became the motion picture “One Tough Cop” staring Stephen Baldwin. Bo became a Congressional candidate, meeting at the White House with President Ronald Regan. His dedication to his family is second to none, and his commitment to various charitable organizations is to be commended. I have been involved with ucpn for over 25 years and I am grateful to my friend Bo for lending his support to helped ucpn carry out its mission of assisting children and adults with disabilities.  I cannot think of anyone more deserving of this award. I congratulate my friend of 41 years on all his achievements.

I hope you will consider joining us on August 4th at the ucpn tournament and dinner as we honor Bo Dietl for his contributions.

Sincerely,

Ron Bellistri
Chairman Emeritus

From the Executive Director - Spring 2011

We have survived a difficult winter that had its challenges weather-wise and worry-wise.  With propose budget issues from our new Governor looming, ucpn’s Administration & Staff have worked hard, well in advance of these potentially devastating cuts, to prepare in an effort to minimize any damaging effects to our agency.

Our constituents: the consumers, families and staff along many other supporters have all played a role in advocating and advising our representatives in Albany.  We have all worked to stress the vital importance of protecting the rights of individuals with disabilities and the continuation of all services and programs so vital to their continued progress and quality of life.

The maturation of many of our adult consumers who have stepped forward to advocate and educate on behalf of themselves and the community of individuals with disabilities inspires and motivates us to continue in our fight.  These dedicated and passionate consumers are in regular communication with our local and state representatives and present a strong and steady voice that cannot be denied.  These consumers are an inspiration to their peers and to all who witness their courage and fortitude.

We are hopeful that all of our voices have been heard and that good decisions will be made.  Given Governor Cuomo’s mandate to have a budget completed by April 1, 2011, we may know the results of our efforts very soon.

We recently held the 7th annual Polar Bear Plunge in Oyster Bay and even with cold, rainy weather, a very large crowd filled the bay with swimmers and the beach with supporters.  The camaraderie and enthusiasm was evident from start till finish and over $40,000 was raised for ucpn.  Our thanks goes out to everyone who played a part in making this event great!  We want to especially thank and recognize John Venditto and the Town of Oyster Bay staff who worked so hard to make this event successful, as they have done each year since the very first swim.  We are also extremely grateful to the Oyster Bay/East Norwich Chamber of Commerce, the Atlantic Steamer Fire Company and the Long Beach Polar Bears for their continuous support and generosity.

The dedication of the “Herb Alloy Cyber Lounge” at ucpn recently took place.  Herb, who passed away five years ago,  provided many years of dedicated service to our agency and his fundraising efforts resulted in over $2 million being raised for ucpn.  Friends and family gathered for a dedication and ribbon-cutting ceremony in February. This innovative room represents the thanks and appreciation of ucpn for Herb Alloy’s efforts and will be a place where his name and spirit live on as consumers gather and use state-of-the-art technology to explore, learn and have fun as they work towards progress.

Lastly, our for-profict venture, Rehab Solutions, has seen increased sales each week.  We are expanding our territories and our sales force to maximize our opportunities for success.  If you are in need of durable medical equiptment or personal health care products, we encourage you to go online and purchase them from the selection of over 15,000 items available at www.rehabsolutionsonline.com.  The prices we offer are very competitive, products are state-of-the-art and are delivered within days of your order being placed.

2011 Polar Bear Plunge: The rain did not dampen the spirit of our Polar Bears!

A tremendous thank you to all who came down to our Polar Bear Plunge!  For those of you who took the Plunge and earned a hat/t-shirt/sweatshirt, they have been ordered and will be mailed to you when they come in. 

The 7th Annual Polar Bear Plunge to benefit the United Cerebral Palsy Association of Nassau County, Inc. (ucpn) was held once again at the beautiful Theodore Roosevelt Park in Oyster Bay.  Honorary Co-Chairs John Venditto, Supervisor of the Town of Oyster Bay and Assemblyman Harvey Weisenberg from Long Beach along with Chairman Jack Sullivan and the Polar Bear Committee worked hard to make this the best plunge ever!

We are extremely grateful to the volunteers from the Atlantic Steamer Fire Company who donated and served delicious hot dogs to the hungry crowd!!  DJ Danny Kelly was on hand to entertain the enthusiastic crowd and to keep our swimmers and fans warm there was plenty of good conversation shared over hot soup donated by H.R. Singleton's restaurant, hot coffee and tea donated by Dunkin' Donuts, hot chocolate, soda donated by Coca Cola Company, Ice Cube Chocolate donated by Alberts Candy and cookies donated by Silver Lake Cookie Company!  KJOY's Street Team & NY Islanders Street Team were on hand to entertain the crowd also!

The ucpn is grateful to the Town of Oyster Bay for hosting the swim, all the swimmers, sponsors, volunteers and to all those coming to show support! 

The Polar Bear Plunge is dedicated to the memory of Lenny Ferraro - Co-Chair.  Lenny Ferraro was instrumental in establishing the ucpn Polar Bear Plunge in 2005 and has provided dedicated and tireless service to ucpn for over 25 years as a member of the Board of Directors and through enthusiastic work on   numerous vital agency committees. Lenny, a true friend to all, passed away on December 1, 2008.  This Polar Bear Plunge and all to follow are now dedicated in his honor and memory.

Click here to view our videos on our Facebook page!

2010 Festival of Trees

The 2010 Festival of Trees was a wonderful success!

 

Over 11,000 people attended and enjoyed the Festival experience and our new venue, the spectacular Cradle of Aviation in Garden City, NY!  The tree that earned first place was designed and decorated by Peggy Bridgewater and was titled, “Christmas Concerto.”  Santa was thrilled to sit with kids all weekend and listen to their wishes this holiday season.

 

Kevin Covias served as emcee all day Friday and then Radio Disney brought fun early on Saturday and Peri Apollo from KJOY brought joy to the stage all afternoon into evening, with station WBLI hosting on Sunday. The entertainment from chorus groups, singers, dance studios and theater troupes delighted audiences all three days of the Festival.  Visitors enjoyed the Cradle of Aviation venue and the museum experience topped off by a ride on the Nunley’s carousel.

 

Thousands of gingerbread cookies were decorated by the children in attendance and hundreds of gingerbread creations made by local students were sold to Festival guests.  Over 400 mini trees and lovely wreaths made by community groups and artisans were purchased by the guests feeling the holiday spirit. Visitors had the opportunity to shop at the unique vendor booths and get a head start on their lists of presents needed.  Dept. 56 collectors were in their glory with the huge selection of pieces so beautifully displayed at the Dept 56 Shop.  We thank Silverlake Cookies for the sweets they donated and Shepher Toys for their generosity in stocking the Festival Top Shop.

 

Sparky, the NY Islanders mascot was a hit with young and old on Saturday and many other costumed characters including Dominick the Donkey, Care Bear and the Festival mascot, Edward Evergreen hugged and high-fived with their fans.

 

The ucpn and the Cradle of Aviation are grateful to all the guests who joined us in support of the 21st annual Festival of Trees!  All proceeds raised will benefit these two organizations. We appreciate the generosity of all tree-designers, volunteers, entertainers, families and other supporters from the community who helped make this Festival the best ever. 

 

Mary Corbett Wins Achievement Music Award!

At the ucpn annual meeting in June, Mary Corbett, a participant in our Life Options program and member of the singing group, Creation, performed a beautiful rendition of "America the Beautiful" to start the evening off.  Later that night, Mary (center in the photo) was honored with a ucpn Consumer Achievement Award for Music.

Nassau Country Executive, Ed Mangano visits ucpn!

The ucpn was pleased to welcome Nassau County Executive, Ed Mangano for a visit this May.  Mr. Mangano met with ucpn Executive Director, Bob McGuire and toured the agency and met many students, consumers and staff members.  The County Executive got to experience a music therapy session, a lesson on butterflies using a smartboard, a visit with teen students who were preparing for their Prom and was presented with art done by some of the Children's Learning Center students.

Shop, Save & Support ucpn!

SHOP, SAVE AND SUPPORT

 

We are continually looking for new and innovative ways to thank you, our valued supporter, for your commitment to our mission. Without you, our work wouldn’t be possible. We are excited to announce a new fundraising program that will reward you for your support AND generate much-needed funding for our organization. Introducing a no-cost online shopping portal that pays YOU cash back and earns our organization a donation on every purchase! A simple, but powerful idea. Thousands of leading merchants, everyone from Best Buy and Travelocity to Target and countless others, pay cash back of 1-40% on purchases of over 300 million products. You’ll be amazed by how quickly it all adds up! Get started. So, as a 'thank you' for your generous support, we are excited to offer you this new program. Click SIGN UP, start shopping and start earning your cash back. THANK YOU. OUR WORK WOULDN'T BE POSSIBLE WITHOUT YOU.

ucpn’s Life Options Program Honored!

ucpn’s  Life Options Program Honored
with the Innovative Program Award by CP- NYS

 

The Life Options Program was awarded the Innovative Program Award by CP-NYS. The award was accepted on behalf of Life Options by Charlie Fleisch and Kevin Christman, who are participants in the Life Options Program, at the CP State Conference held in Saratoga Springs in November 2009.  ucpn Executive Director, Bob McGuire and Assistant Executive Director Karen Geller-Hittleman were on hand for the ceremony along with Sharon Rothstein, Director of Adult Day Services, and Maria Maringelli, Coordinator of Life Options and other Life Options staff members and program participants.

 

Charlie and Kevin both gave mesmerizing acceptance speeches, so well received by the 1,000 attendees at the conference that you could have heard a pin drop. Sharon Rothstein commented, “We are very proud of the Life Options Program and the fact that the services provided are truly driven by the interests of the participants and administered by a creative and dedicated staff who strive to provide interesting, challenging programs for the participants to experience on a daily basis.” 

ucpn Community-Based Day Habilitation at Wantagh Celebrates 10 Year Anniversary

ucpn Community-Based Day Habilitation
at Wantagh Celebrates 10 Year Anniversary

 

The ucpn Community-Based Day Habilitation at Wantagh program is celebrating 10 years of providing services in the community at the Wantagh HUB. The program moved from a small space in ucpn to the Wantagh Hub on December 15, 1999. The program consists of 28 developmentally disabled adults and seven staff members who go in to the community daily volunteering and assisting at 10 different non-profit organizations.

 

A anniversary luncheon celebration was held on December 14th at the Hub with many guests in attendance including family and friends of the Day Habbers.  Karen Geller-Hittleman, ucpn Assistant Executive Director gave the official welcome and extended congratulations on behalf of all at ucpn to Mary C. Hodge, the Manager of the Wantagh Hub, the staff and the particpants on all their impressive accomplishments over the past decade.  Mike Kruter a community neighbor and good friend to the group was also on hand for the celebration which happened to occur on his birthday.  The group serenaded Mike with a heartfelt rendition of “Happy Birthday” along with an expression of thanks for all his kindness and support.  Elvis Trenchfield, a Community Coach at the Hub and talented chef, catered the entire luncheon with delicious food that rivaled the best any gourmet restaurant could offer!  There were tears, smiles and laughter at this memorable commemoration of many wonderful years of helping in the community and, in so doing, helping program particpants learn new skills, make new friends and experience new things to make life fun and rewarding.

 

When the Day Habbers are not Volunteering, they are in the community taking part in educational or social events. The Day Habbers also access the community through LIRR trains rides into Manhattan and local public bus trips. When asked how he feels about Day Hab, participant Michael Fitzgibbon remarked, " I like Day Hab because I can go out to Volunteer at the Sandel Center in Rockville Centre and Meals on Wheels in Suffolk where I like to help take meals to the Seniors’ houses. I like to go out and buy lunch at Friday's where I work on money skills and I like to talk to the staff.  I love the staff at Day Hab."

Anna Maria Impagliazzo, parent and Council of Auxiliaries volunteer joins her daughter Loretta and felllow Wantagh Hub partipants at the anniversary celebration.

 

SAVE Money and Time with Rehab Solutions Online!

For Great Savings on Health, Wellness and Medical Supplies!

HEALTHCARE PRODUCTS WITH YOU IN MIND

REHAB SOLUTIONS

 

SAVE GAS, SKIP A TRIP, SHOP ONLINE!

 

You can save an average of 30% on the purchase of medical wellness products with Rehab Solutions! Rehab Solutions offers a product line of over 25,000 health-related products while continuing to sell and service durable medical equipment as it has done for the past ten years!

 

TO ORDER:       http://www.rehabsolutionsonline.com

 

For questions or more info, email:  or Call 1-888-DMEFORU

Proceeds benefit the United Cerebral Palsy Association of Nassau County, Inc.

 

REHAB SOLUTIONS, INC.
RECEIVES ACCREDITATION, ILLUSTRATING ITS COMMITMENT TO EXCELLENCE IN CUSTOMER SERVICE AND CARE

 

 Rehab Solutions, Inc., a durable medical homecare equipment company, has achieved the Award of Accreditation from the Healthcare Quality Association on Accreditation, based in Waterloo, Iowa. This award is achieved only when home medical equipment companies demonstrate a high level of quality practices in their business operations and customer service techniques.  Rehab Solutions, Inc., earned the three-year accreditation after completing a comprehensive application and a 2 day onsite survey that focuses on customer care/service, financial stability, and a commitment to quality operational practices and procedures. Accreditation by the Healthcare Quality Association on Accreditation assures Medicare and other payers that the highest levels of quality are practiced within all areas of the company. 

 

Founded in 2005, the Healthcare Quality Association on Accreditation seeks to continuously set standards of the highest quality on behalf of the durable medical equipment industry and business owners. Its interactive, Web-based design is specifically aimed at the durable medical equipment industry, providing a targeted approach to accreditation and quality improvement.

 

Rehab Solutions, Inc. achieved it’s three year accreditation within these specialized areas:  Rehab (Assistive) Technology Supplier, Custom Orthotics and Mail Order for Internet Sales.

 

Crazy Cold for the Cause: LI Polar Bears Take the Plunge!

Nearly a hundred brave souls ran into the icy waters of Oyster Bay - in a crazy dash to help those in need in our community - for our 5th Annual ucpn Polar Bear Plunge!

Gatehring once again on the beach of Theodore Roosevelt Park in Oyster Bay to help raise funds for United Cerebral Palsy Association of Nassau County, Inc. (ucpn), our intrepid volunteers braved the cold on behalf of UCPN's consumers.  Honorary Co-Chairs John Venditto, Supervisor of the Town of Oyster Bay and Assemblyman Harvey Weisenberg from Long Beach along with Chairman Jack Sullivan and the Polar Bear Committee have worked to make this the best plunge ever!

DJ Danny Sullivan was on hand to entertain the enthusiastic crowd! To keep our swimmers and fans warm there was plenty of good conversation shared over hot soup donated by H.R. Singleton's restaurant and hot coffee and tea donated by Dunkin' Donuts!  We are also grateful to the volunteers from the Atlantic Steamer Fire Company who donated and served delicious hot dogs!

The ucpn is grateful to the Town of Oyster Bay for hosting the swim, all the swimmers, sponsors, volunteers and to all those coming to show support! 

If you would like to volunteer to help out at next year's event, please contact Elizabeth Katz (516) 378-2000 x352.

This year's Polar Bear Plunge is dedicated to the memory of Lenny Ferraro - Co-Chair.  Lenny Ferraro was instrumental in establishing the ucpn Polar Bear Plunge in 2005 and has provided dedicated and tireless service to ucpn for over 25 years as a member of the Board of Directors and through enthusiastic work on   numerous vital agency committees. Lenny, a true friend to all, passed away on December 1, 2008.  This Polar Bear Plunge and all to follow are now dedicated in his honor and memory.

 

A Tremendous Thank You to Our SPONSORS!

Speakers Bureau Brings “Kids on the Block” Puppet Presentation to Local First Grade

The “Kids on the Block” puppet presentation is offered as a community service through the ucpn Speaker’s Bureau.  The first grade class at Forest Brook Elementary School in Hauppauge enjoyed the presentation and learned a lot about being kind and caring towards people with disabilities.  To arrange for a presentation, call 516-378-2000 ext 352.

Back Row (Left to Right)

Dr. Christopher J. Michael, Principal – Forest Brook Elementary School
Iris Alessi, Council of Auxiliaries Executive Board – President of Plainedge Auxiliary
Margaret Govits, 1st Grade Teacher, Forest Brook
Samantha Alexander, Teacher, Life Options, ucpn
Elizabeth Katz, Coordinator of Volunteers, ucpn
Vera Schwartz, puppeteer, ucpn volunteer
Tessa Tavernier, Community Coach, Life Options, ucpn

Front Row:  Nancy Pedersen – puppeteer – Participant in Life Options, ucpn
With students from Ms. Govits’ First Grade Class

Forensics, Yoga, Public Speaking: Life Options is Expanding Horizons

Over the past few months there have been a lot of exciting things happening in the Life Options program.  As we come to the end of our 3rd year, we continue to grow and expand.  The roster of participants in Life Options has grown to 131 and we still have people on our waiting list!  The participants continue to learn and grow in the program.  Several of them hold Teacher Aide positions in Life Options.  In these positions the participants write lesson plans and assist with teaching classes such as computers, creative writing and poetry.

In addition to the increase in participants, we have added new classes to our program.  Recently, we added a class in Forensic Science/Psychology.  Due to the nature of the information that would be presented the staff were initially hesitant about offering this class.  The participants advocated for themselves and are now learning about how investigators process a crime scene to learn how crimes were committed, how they track down criminals and how the criminal mind works. 

Two of our newest classes are Yoga and Yearbook.  Many of our participants enjoy the Yoga class.  It has been adapted to allow everyone to participate.  The Yoga class teaches relaxation and body awareness.  It is so popular that our staff often join in on their breaks.  The yearbook class has begun to gather information and pictures to record all of the happenings in the program.  We look forward to sharing the first edition with everyone.

Several Life Options members have been participating in the Public Speaking Elective and the Speaker’s Bureau which has helped them feel more comfortable with public speaking.  The teachers and participants joined forces to speak about Disability Awareness at the Nassau County Museum of Art in Roslyn Heights.

Our computer room has been outfitted with several Wii video game systems.  These systems have been used to enhance our PT program.  The Clinical Services Department and Computer Room teacher teamed up to develop programs that will incorporate fine motor skills and exercise programs.  The controllers have been adapted to be used with therapeutic equipment.  These adaptations allow participants with limited movement to participate in the games using the movement they have.  The systems are interactive and allow people to see their movements turn into a strike in bowling or a hole in one in golf.

Recently, the Music Group held a fundraising concert for the Carmen Road School.  The school had a fire in June and is in the process of rebuilding.  Many of our participants graduated from the Carmen Road School and felt they wanted to do something to help their alma mater.  The music group did a wonderful job of getting the entire audience into the music.  Everyone there came together for this worthy cause.

The participants and staff of the Life Options program encourage visitors to come and see the artwork displayed throughout the program and observe our classes in action.

By Maria Maringelli

UCPN Represented at Prestigious Conference

Mary Jean Dyczko Represents ucpn at Prestigious Conferences in the Assistive Technology Arena

Mary Jean Dyczko recently represented the ucpn at two major conferences for professionals in the Assistive Technology arena.  "Accessing Assistive Technology: Beyond Simply Using Your Hands" was presented April 12th to the New York State Speech-Language-Hearing Association (NYSSLHA) in Saratoga Springs, New York.     Mary Jean submitted her presentation proposal & abstract for consideration by the review board of NYSSLHA and was honored to have her proposal selected for presentation to the conference of Speech Language Pathologists and Audiologists.

The second presentation, "Individuals with ALS: Exploring AAC Assessment and Intervention” was made to the Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) on June 28th. The conference was held in Virginia, right outside of Washington, D.C.  This is a very large, international annual conference with attendees from throughout the world who work within the field of Assistive Technology, including Speech Language Pathologists, Assistive Technology Practitioners, Assistive Technology Suppliers, Rehab Engineers, Rehab Technicians, OTs, PTs , Program Managers and Administrators as well as consumers and  caretakers. The RESNA conference committee selected Mary Jean’s presentation proposal and abstract from more than a hundred proposals.

Accessing Assistive Technology: Beyond Simply Using Your Hands

When an individual has difficulty using his/her hands or is unable to use them at all, that person may need alternative methods to access an augmentative communication device or computer.  The use of a touch screen, standard keyboard and mouse may no longer be feasible, effective or reliable.  This short course introduces a variety of alternative methods of access.  Direct and indirect access to vocabulary items, icons and computer software programs will be discussed.

Individuals with Amyotrophic Lateral Sclerosis: Exploring Augmentative and Alternative Communication Assessment and Intervention Needs

This session will define and introduce participants to the nature and progression of Amyotrophic Lateral Sclerosis (ALS) and its impact on communication (oral and written).  Traditional and Specialized (augmentative alternative communication, AAC) Speech Therapeutic intervention will be discussed.  Specific psychosocial issues unique to persons/people with ALS (PALS) that influence assessment, intervention and AAC acceptance will be explored.  Selection and administration of AAC evaluation procedures for PALS will be discussed.  Fluctuating access issues and how to address them will be explored through pictorial support and actual access methods being used during the session.  Identification of funding sources will be reviewed. 

Michael Badalucco of “The Practice” visits UCPN

Michael Badalucco from “The Practice” Shares a Day with Teen CLC Students

The last day of school was made extra exciting for the teen academics class when special visitor, Michael Badalucco, star of stage and screen joined them in the classroom and spent time getting to know one another and sharing pizza and a movie!  Michael is a family friend of CLC student Josh London and that is how the visit came about. In “Pizza My Heart,” an ABC Family Channel movie that the group viewed, Michael plays a Dad and pizza parlor owner in Verona, New Jersey.  The students enjoyed a wonderful time, enjoying hot pizza while they viewed this funny and heartwarming movie with its star right there with them!  All the students and staff members commented on how much they enjoyed their visit with Michael, even though he is someone famous, he was like a friend they all felt comfortable with and was a great listener as well as a great sharer of stories.

The students prepared questions and interviewed their special guest and thought Center Square readers would enjoy excerpts from the session:

CLC students: How did you feel when you filmed your first movie?
MB: I was very nervous because the movie was “Raging Bull” and I was working with Robert DeNiro.

CLC Students:  What was it like working with Will Farrell and Nicole Kidman in Bewitched?
MB: Both of them are very nice.  One of the most memorable scenes in this movie was the dog scene which I thought was really funny.

CLC Students: How long have you been acting in movies?
MB: For 32 years!

CLC Students: When did you get married?
MB: Eleven years to Brenda.  We met on a blind date, she is from Ohio and I am from Brooklyn.

CLC Students:  What are you working on now?
MB: I just finished an episode of the television show “Bones” and I am developing a movie.

CLC Students:  Did the writers’ strike effect you?
MB: Yes, when the writers go on strike, it affects everyone from the actors to the producers to the makeup artists.

CLC Students: Are gas prices affecting you?
MB: Yes, I have to travel to New Jersey and I hope I can make it on what is left in my tank so I can fill up at a place I go there where gas is cheaper!

CLC Students:  How did you feel when you received your first Emmy award?
MB:  First of all, I am pleased to hear you say “received” rather than “won” because acting is not a contest, you do the best you can.  I was pretty nervous, I had prepared a speech but when I went up to receive the wards, it was like I didn’t.

CLC Students:  Who is your favorite actor or actress?
MB: Tom Hanks is my favorite actor.  Prior to acting, I was a “prop man.” I worked on the movie “Big” and Mr. Hanks was very nice.  As a result, I was very excited work with him as an actor in the movies “Sleepless in Seattle” and “You’ve Got Mail.”

The Ballerinas of UCPN: Reaching For Their Dreams.

Today I'd like to introduce you to three year old Jimari, a student who came to the Children's Learning Center (CLC) through the Early Intervention program. The smallest child in triplets, Jimari didn’t get quite enough oxygen, in the womb and was born with significantly under-developed legs. While her siblings grew up running and playing, Jimari crawled and recovered from painful surgery on her hips.

When she first arrived at the CLC, her teachers say that she was withdrawn and, in many ways, fearful. Still, they worked patiently with her, ever alert for a way to reach her. Finally, they discovered that Jimari loved dancing. Her sister was participating in dance class and she desperately wanted to go too, but she couldn't walk, let alone dance. So, CLC teachers and physical therapists, who had a background in ballet, created a ballet club at the school, just for Jimari! Though reticent at first, Jimari grew to love the ballet club and has made huge strides at school because of the club. Her teachers tell me that she taught herself to walk with the help of braces and her self esteem has greatly improved. Now she'll often tell her teachers not to help her, opting for balancing herself on her walker instead. The ballet club has helped her believe in herself and her independence. She has truly blossomed. The sound of her voice, confidently calling out in class, is something that warms our hearts everyday. I continually find myself inspired by Jimari and the 1,800 individuals with disabilities that ucpn serves every year. Those of us who have gone through surgery and rehabilitation know how difficult it can be. At age three, Jimari has been through surgery twice. Who knows what the future holds for her? Still she finds a way to strive for more and inspire everyone around her in the process.

The Enlightenment philosopher Voltaire cautioned against submitting to the status quo, insisting that “we must cultivate our gardens.” For the past sixty years, the United Cerebral Palsy Association of Nassau County has endeavored in the spirit of this missive, insisting on a better, more inclusive world for people with developmental disabilities. In the process, we've found our own gardens more vibrant, lush and full. Jimari is but one blossom we are working tirelessly to nurture. Won't you help us in our continued cultivation?

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UCPN is constantly growing and changing, to better help people with diabilities in our community transcend their limitations. Here's how we've been doing it lately!

Creation Raises Disability Awareness

During the month of December, Creation visited all of the Elementary Schools in District 13 in Valley Stream for “Disability Awareness.”  Maura Wachsberger an instruction in ucpn’s Life Options program and the Music Director for Creation accompanied group members David Tindal, Chris Wawzronek, Riva Zinno and Melissa Herrara to the school performances.

Lou Panacciulli, Music Teacher in the Valley Stream district and the Conductor of the Nassau Pops is a good friend to Creation and was instrumental in setting up this opportunity.  Session began with the group members talking to the children about various disabilities, followed by a question and answer period.  The children’s questions were excellent.  They appeared to be compassionate and sensitive.  This was followed with a 40 minute performance during which. Creation demonstrated their amazing “can do” attitude and positive spirit.  By the end of the performance the children were singing along with the group.  One fifth grade class shared that they were learning sign language to a beautiful Barbra Streisand song, “At the Same Time.”

Creation was invited to return to one of  the schools 2 weeks later to experience their performance and thoroughly enjoyed it!  Creation has extended an invitation to the students from Valley Stream to come to ucpn to perform.

Celebrate Our 60th Anniversary!

Since 1948, the United Cerebral Palsy Association of Nassau County, Inc. (ucpn) has been assisting people with disabilities.  Over these six decades of service, countless individuals have benefited from the programs and services offered by our agency.  Children and adults have had the opportunity to travel the road from “disability to capability” and make strides towards their goals with the help of skilled and dedicated staff members and volunteers at ucpn.  The families of these individuals have also benefited from the assistance and guidance provided by caring and knowledgeable staff members at ucpn. The advocacy efforts of consumers as well as staff and board members have advanced the cause of individuals with disabilities, and while there is still work to be done, right now in 2008, laws and regulations in place guarantee rights and entitlements that protect and insure the dignity and liberties of individuals who are challenged by disability.

On May 9th, the agency will host a grand celebration here at our headquarters building.
and all are welcome.  More details will be available on the ucpn website at http://www.ucpn.org